Channa47's Journey with Multiple Myeloma

I was diagnosed in September 2010, and very shortly after started treatment. I was in excruciating pain due to a fractured pelvis.

I was diagnosed at my local hospital, and then transfered to another for furthur testing and given stronger pain meds due to the biopsy that was done.

The chemo that I first given was Velcade, which at least didn't make me lose my hair. I was taking this from September 2010 to January 2011.

I had a port-au-carthe installed due to the damage the chemo was doing to my veins, and later on a pic-line to take my stem cells. The pic-line had to stay in for the duration of the collection of stem cells, and for the transplant.

I had a megadose of chemo, lost all my hair, and had to stay in the hospital for a month. I felt like I was in prison, and was in a lot of pain. I constantly had cramps, and had diaheria for a whole 3 weeks of my stay. It was really a hellish event for me, something I wish I would not have to go through again.

I've now been taking this treatment since about August or September 2011. Everything was going well until the beginning of 2012, since I started on 25mg, my blood count was low and I was hospitilized for about a week. I went down to taking 15mg of Revlimid instead.

Finally what was the hopeful outcome happened in the late summer of 2012. I had a real big scare before, since my onocologiste had told me that most probably in the Autaumne of 2012 I would probably have to go through another Stem Cell Transplant. At this time and even now I have been looking for Alternative and/or complementary treatments. I think that I so much did not want to do the Stem Cell Transplant again, that I actually prayed and tried meditation which probably worked, to be in Remission.

I was treated with Aredia to help my bones.