Channa47's Journey with Multiple Myeloma

Patient: Multiple Myeloma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 6 years ago, Female, Age: 51

  1. 1
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
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    First Diagnosed with Multiple Myeloma

    Oh No

    I was diagnosed in September 2010, and very shortly after started treatment. I was in excruciating pain due to a fractured pelvis.

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  2. 2
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
    Channa47's Avatar

    Pain medicine

    Drug or Chemo Therapy

    I was diagnosed at my local hospital, and then transfered to another for furthur testing and given stronger pain meds due to the biopsy that was done.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    The chemo that I first given was Velcade, which at least didn't make me lose my hair. I was taking this from September 2010 to January 2011.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    I had a port-au-carthe installed due to the damage the chemo was doing to my veins, and later on a pic-line to take my stem cells. The pic-line had to stay in for the duration of the collection of stem cells, and for the transplant.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
    Channa47's Avatar

    I had a Stem Cell Transplant.

    Clinical Trial

    I had a megadose of chemo, lost all my hair, and had to stay in the hospital for a month. I felt like I was in prison, and was in a lot of pain. I constantly had cramps, and had diaheria for a whole 3 weeks of my stay. It was really a hellish event for me, something I wish I would not have to go through again.

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  6. 6
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
    Channa47's Avatar

    Maintenance Treatment of Revlimid and Dex.

    Drug or Chemo Therapy

    I've now been taking this treatment since about August or September 2011. Everything was going well until the beginning of 2012, since I started on 25mg, my blood count was low and I was hospitilized for about a week. I went down to taking 15mg of Revlimid instead.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
    Channa47's Avatar

    Remission

    Celebration

    Finally what was the hopeful outcome happened in the late summer of 2012. I had a real big scare before, since my onocologiste had told me that most probably in the Autaumne of 2012 I would probably have to go through another Stem Cell Transplant. At this time and even now I have been looking for Alternative and/or complementary treatments. I think that I so much did not want to do the Stem Cell Transplant again, that I actually prayed and tried meditation which probably worked, to be in Remission.

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  8. 8
    • Channa47
    • Experience with Multiple Myeloma
    over 4 years ago
    Channa47's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    I was treated with Aredia to help my bones.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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