potpie's Journey with Invasive (Infiltrating) Ductal Carcin...

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 5 years ago, Female, Age: 53, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • potpie
    • Experience with Invasive (Infiltrating)...
    over 4 years ago
    potpie's Avatar

    Mastectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. 2
    • potpie
    • Experience with Invasive (Infiltrating)...
    over 4 years ago
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    Breast Reconstruction (Implant)

    Procedure or Surgery

    Currently dealing with tissue expander. It's not horrible, but it does limit me.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • potpie
    • Experience with Invasive (Infiltrating)...
    over 4 years ago
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    I was unsure that chemotherapy would benefit me. Wanted second opinion.

    Decision Point

    A lot of research showed that chemotherapy may not benefit my type of breast cancer. My oncologist only wanted to proceed with chemo. She did not want to order Oncotype DX test, or if she did, would not consider results. I looked for a second opinion, and also found a clinical trial.

    0 Comments
  4. 4
    • potpie
    • Experience with Invasive (Infiltrating)...
    over 4 years ago
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    Axillary Lymph Node Dissection

    Procedure or Surgery

    One sentinal lymph node had a micro metastasis found in the follow up pathology after surgery. I had to have this as a second surgery. There was no cancer found in these axillary lymph nodes. This surgery was more debilitating than the mastectomy. Had seroma drained twice, it was very painful. I am still trying to regain my range of motion.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • potpie
    • Experience with Invasive (Infiltrating)...
    over 4 years ago
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    NO CHEMO FOR ME!

    Celebration

    I had a low score on the Oncotype DX test. I was randomized to the hormonal therapy group of the RxPONDER clinical trial. I am on my way forgetting about cancer.

    0 Comments
  6. 6
    • potpie
    • Experience with Invasive (Infiltrating)...
    over 4 years ago
    potpie's Avatar

    RxPONDER. Phase III trial compares chemotherapy followed by hormone therapy to hormone therapy alone.

    Clinical Trial

    This clinical trial is for patients with node-positive, hormone-receptor positive, HER2 negative breast cancer who also have low to intermediate Oncotype DX recurrence scores. It aims to answer the question: "what are the benefits -- if any -- from adding chemotherapy to hormonal therapy after surgery?" I read a lot of research that is beginning to show that chemotherapy may not be beneficial to luminal A breast cancer (ER/PR +, HER-, low grade). My Oncotype DX score of 16 predicted the same benefit from hormonal therapy alone, to chemo plus hormonal therapy. I entered the trial to help researchers gather more data for future patients struggling with the same decisions.

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