jollymon's Journey:

Survivor: Thyroid Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Female, Age: 66

  1. 1
    • jollymon
    • Experience with Thyroid Cancer
    about 4 years ago
    jollymon's Avatar

    Problem with doctor

    Oh No

    My first Endocronologist refused to do a needle biopsy at first, after my ENT demanded it she finally did it, with the precaution that if any abnormal cells were found then I'd have to get my thyroid out.....It had cancer in it, so get it out of me now!! Glad the ENT kept insisting or I may be far worse today!

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  2. 2
    • jollymon
    • Experience with Thyroid Cancer
    about 4 years ago
    jollymon's Avatar

    I had to decide whether of lose my whole thyroid or the half that had cancer in it.

    Decision Point

    I interviewed several surgeons, my first question was "how many thyroidectomies do you do a year,month, week"? I was looking for experience because you have to be careful of parathyroid glands and your voice box. When I decided on a surgeon, I asked him if I were his Mom, wife or sister would he do all or half? Of course he wouldn't answer until after I said lets do all. Then he said good that's what I would want for my family member.

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  3. 3
    • jollymon
    • Experience with Thyroid Cancer
    about 4 years ago
    jollymon's Avatar

    Surgery

    Procedure or Surgery

    I had already been on synthroid for almost 20 years, so I will have to continue taking it or better yet Armour. I also take Victoza becasue I am insulin resistant now.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • jollymon
    • Experience with Thyroid Cancer
    about 4 years ago
    jollymon's Avatar

    Internal radiation

    Radiation

    I took the I-131 capsule of radioactive iodine, after completing a month of iodine starvation. That causes iodine starved thyroid cells to uptake the radioactive iodine and be killed. Your Thyroid can throw off cells and they can re-implant anywhere in the body, so you need to kill off all the thyroid cells. I had to be isolated within my home. No cooking, eating off plasticware, flush toilet several times each time I used it. I even set off an alarm at a Marine Corps base a block or two from the gate!! My husband could stay inside the house with me but be within no less than 3 feet away for a total of 1 hour a day. Treatment was over after 3-4 weeks, good trade for any remaining thyroid tissue with it's cancer being gone. I have had 2 thryoid scans and I am free!

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • jollymon
    • Experience with Thyroid Cancer
    about 4 years ago
    jollymon's Avatar

    Finished treatment

    Celebration

    The radioactive iodine treatment was a pain in my tail, only because of inconvenience. Nothing else. Having to starve my body of iodine before the radioactive iodine and again before each of my 2 thyroid scans is hard because many foods have iodine in them, but the result is that I am free of thyroid tissue.

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