shauna0915's Journey:

Lost Loved One: Lung Cancer > Non-Small Cell > Adenocarcinoma

Patient Info: Diagnosed: almost 6 years ago, Male

  1. 1
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
    shauna0915's Avatar

    Lost loved one

    Loss

    My dad passed away 3 months after diagnosis. I was the main point of contact for everyone and the main source of support for my dad and step-mom. I was the one who talked to the doctors and hospice. I was the one who interpreted to my family what the doctors were saying. I was the one who took care of all the legal stuff. I was the one who gave my dad morphine every 2 hours at the end...and I was the one who took his oxygen off and told him it was okay to go. I even checked vitals and pronounced time of death. I was the only one who ever saw all of the scans and knew exactly how bad the cancer was. I was in charge of everything. I'm having a really hard time dealing with everything right now. It seems like everyone in my family is dismissing what I am going through...basically telling me there's nothing to be upset about and to get over it. It's been 5 months since my dad passed away and I still cry all the time. I didn't cry much at first, through the diagnosis, treatment or funeral. Now I can't stop crying. I know I did everything I could do to help my dad, but I guess I'm feeling cheated because I didn't talk to him for almost 12 years and only started mending our relationship 6 years ago this Christmas Eve.

    2 Comments
  2. 2
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
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    Misdiagnosed

    Oh No

    My dad was originally told he had an upper respiratory infection. At one point he was told he had COPD.

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  3. 3
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
    shauna0915's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My dad had chemo treatments 3 weeks apart. He could only do 2 treatments because the weekend before week 3 (chemo week) he would get extremely ill and eventually was having seizures so it was a joint decision between family and the doctors to stop chemo. The actual chemo was easy for him to receive...though he got bored because it took so long. Music helped him, and snacks.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
    shauna0915's Avatar

    External radiation

    Radiation

    Dad went through radiation fine. The only thing he really experienced was a change in his taste (nothing tasted good anymore) but we don't know if that was because of his the cancer, his tumors, or the radiation.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
    shauna0915's Avatar

    Decision Point

    It was dad's decision to fight the cancer once he was told it was terminal and he had maybe 6 months without treatment. They couldn't guarantee treatment would help. The oncologist told us IF the chemo was able to slow the cancer down, dad may have been able to go a year or two...but, again, no guarantees. The problem was that dad was already so weak and the cancer was already so progressed that the chemo didn't affect it at all. In fact, the oncologist told dad and I, when dad decided to stop chemo, that he had never seen a cancer as aggressive and unresponsive to treatment as my dads. That was the day, June 14th, we collectively decided to stop the chemo because it was doing more harm than good. That was the day it became more about quality of life than quantity. Honestly, I was against chemo from the beginning and I tried to talk him out of it. I can't say the chemo made his time shorter...I don't know that. All I could do was support my dad's decision to fight. He wanted every minute he could get. It was ultimately his decision to stop. He actually told his oncologist, with tears in his eyes, "Doc, if you'd told me it was going to be this bad, I never would've done it".

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  6. 6
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
    shauna0915's Avatar

    Lost loved one

    Loss

    Our family lost another to cancer over the holiday season. Though he wasn't directly related to me (only by marriage), I think it is important to acknowledge that this monster called cancer is not backing down. Chester was my step-mom's ex-brother-in-law. Ironically, my dad's middle name was Chester (we called him Chet, they called their Chester "Chetty"). Chester was diagnosed with the same cancer as my dad, a month after my dad passed away. He was diagnosed in August and passed December 27th. My step-mom, step-sister and I attended the funeral on New Years Eve. Chester was buried in the same cemetery, and in very close proximity to my dad and step-brother, which made it just that much harder to be there. I'm so emotionally exhausted from losing so many to cancer. I keep fighting for them as much as I can and cancer keeps winning. WHY?????????

    1 Comment
  7. 7
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
    shauna0915's Avatar

    Breakthrough

    Celebration

    I was recently asked to write something about my experience with hospice during my dad's fight with cancer. I was reluctant at first, because I knew it meant reliving all the things, good and bad, we experienced as my dad fought his cancer. So, I started at the beginning...the day dad was diagnosed...and went from there. As I wrote, I didn't cry. I felt a weight being lifted from my shoulders....my head became a little clearer. It took me nearly 2 hours to write about my journey with hospice, but in the end I found that not only did hospice help my dad, but they helped me and my entire family. I realized how much I learned and how loving and supportive the hospice staff was during the entire ordeal. I came away from my 2 hour writing session with a smile on my face after writing about the most horrible event in my life, because I knew the folks from hospice (nurses, aides and volunteers) were and still are angels here on earth with the patience of a Saint and a love bigger than anyone could ever know. They face death on a daily basis, yet the continue to smile and laugh and joke with their patients and the families of their patients. They become part of your family...if you let them. I'm so glad I was asked to write about my experience with hospice because it finally made me see something good and bright in all of the darkness and, for a moment, I felt a bit lighter and warmer. So, THANK YOU to all the angels working in hospice care.

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  8. 8
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    about 5 years ago
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    Dad's grave marker is finally ready!

    Celebration

    After months of waiting and tons of phone calls, my dad's grave marker is finally ready. We decided to go with a marble bench instead of a traditional headstone because too often people want to go sit and visit with their loved one at the cemetery and have nowhere to sit. The monument company emailed a picture of the finished product and we're all very pleased with the way it turned out. I know it may seem insignificant to some, but this really is a big deal for me, as well as some other family members. It's been hard to go to the cemetery with nothing really there to identify the site. It still seems surreal that all of this has happened and that my dad is actually gone, but I think finally having the bench/marker there will help bring a bit of closure to such a horrible year. Here's hoping for a much better 2012!

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  9. 9
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    almost 5 years ago
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    I may have COPD!

    Oh No

    I've had chronic bronchitis for over a year. It got so bad this last go round that my PCP sent me to a Pulmonologist. I've had a lung function test, a CT scan of my lungs and another sleep study. My CPAP pressure was changed and I'm on a steroid inhaler. I go back for followup and to find out the results on April 5th. There was indication from the lung function test that I do not express enough air from my lungs, which is a sign of emphysema. Chronic bronchitis plus emphysema equals COPD. 2 more weeks of waiting...

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  10. 10
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    almost 5 years ago
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    CT scan shows "nodules" in my lungs

    Oh No

    I finally got the results of my CT scan. I have 4 nodules they are "watching". I go back in August for another scan. The good thing is...I FINALLY quit smoking on Valentine's Day. The cough has been gone for a few weeks now, but I keep getting a really bad sore throat. I've been to the doctor for it and get antibiotics. It's been tested and isn't strep. I don't know what's up with it. One problem goes away and another one starts.

    2 Comments
  11. 11
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    almost 5 years ago
    shauna0915's Avatar

    BFF's sister just diagnosed with Lukemia!

    Oh No

    My best friends sister was just diagnosed with AML (acute myeloma lukemia) and will undergo 2 straight weeks of chemotherapy. Her platelets keep dropping below 30 and she had to have platelet infusions. My BFF is her only sibling and both parents are deceased. She will be tested this week to see if she is a close enough match to be a bone marrow donor for her sister. She feels obligated to donate because it's her sister, though they don't get along and there are some family members that are actually telling her not to donate. I feel bad because she's catching it from both sides... "do it" and "don't do it". Neither she, nor I, can understand how someone could ever say "don't do it".....especially when it's family and she's the best possible match. How heartless is the person that tells you it's wrong to try to help save someone from dying??? I can't even grasp the concept. I volunteered to be tested, but was told it's very unlikely that I'd be a match and that they'd go through the national registry. I'm just so aggravated that every time I turn around there is someone else I know being diagnosed with cancer. It isn't stopping and it's really starting to get to me!

    1 Comment
  12. 12
    • shauna0915
    • Experience with Adenocarcinoma, Lun...
    almost 5 years ago
    shauna0915's Avatar

    Oh No

    This person has yet to add any details about this experience.

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