lawcreate's Journey with Cervical Cancer

Patient: Cervical Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Female, Age: 56, Stage IV

  1. 1
    over 3 years ago
    lawcreate's Avatar

    Procedure or Surgery

    my cancer was a total surprise - I went in to have an ovary removed and came out with a total hysterectomy with oophorectomy. I had a huge, painful, unexplained lump on my head, my eyes were swollen shut and the glue from the tape was all over my eyelashes and my diaphragm was bruised from the position I was in for surgery (it lasted 6 hours). To top it all off, I gradually got worse after coming home. What no one knew, was that the surgeon has accidentally nicked my bladder and I was leaking urine into my abdomen. Another weekend in the hospital and a foley for 3.5 weeks ...... I still have no feeling in my left leg crease where the majority of the lymph nodes were removed. I vow never to undergo any procedure, surgical or otherwise, until I know, in full detail, exactly what they will be doing to me.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    over 3 years ago
    lawcreate's Avatar

    Drug or Chemo Therapy

    I managed to come through the chemo portion(s) very well. The first chemo I had was with rad - low dose cisplatin. I saw a nutritionist who was versed in supplements during chemo/rad and followed all her recommendations. I managed 4 out of 6 rounds of carbo/taxol after the rad. I did not pursue one of the supplements and ended up with neuropathy in my feet and lower legs. The neuropathy did not start as was described to me, rather the chemo had a big effect on my feet, heels in particular and legs. My feet ached, my heels felt like someone was hanging me upside down by my heels and really sore legs. I did some acupuncture for this and it helped my legs, but the most relief was through detox. I am still working on it almost 3 months out. After a little more detox, I'll switch to something to repair the nerves.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    over 3 years ago
    lawcreate's Avatar

    Radiation

    I had 5 weeks of IMRT. The tech staff was great and they checked me every week. Everything they told me about, did indeed happen - meaning the diarrhea came right on time (Imodium helped a lot) and the fatigue was cumulative. I did really well, meaning I worked outside most Saturday's, until the end. I hit the fatigue point at about week 4 to 4.5, but was totally drained the week AFTER (week 6) the last rad. I had really long naps and slept 10-12 hours a night. hat lasted about a week and it turned around. I knew when I hit my energy limit and rested when I had enough.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    over 3 years ago
    lawcreate's Avatar

    Side Effects

    neuropathy - what exactly does the chemo do to the nerves - my sweet husband, a pharmacokineticist, is reading to determine what is damaged so I can fix it. he says they are not exactly sure ..... no wonder we don't get concrete answers - just more drugs to mask the problem.

    0 Comments
  5. 5
    over 3 years ago
    lawcreate's Avatar

    Milestones

    I did it!! PET scan was clear - just waiting on pins and needles to see if it recurs. Doc gave me a 40-50% chance of recurrence. It really makes me think a whole lot about what I want to do for the next 2 yrs, 5 yrs, 10 yrs or if I will make it to 20 or more yrs.

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  6. 6
    almost 3 years ago
    lawcreate's Avatar

    Almost 1 yr!

    Celebration

    Almost 1 yr from last chemo and things are going well. I have to say, it took longer than I expected/wanted for the neuropathy to go away (about 9 months), my blood work (WBC and platelets) is still not normal (ok - give it the 2 yr mark), my hair came back ultra-curly (giving it 2 yrs) and it has somehow messed up my thyroid (super hyper right now, but waning) but it's watched closely. Overall, I have to say it was a very grounding journey and taught me a lot about myself, my family and my friends. I know we all read stories how bad this journey can be, but through the grace of God, I am someone who made it through this all very well. I have much to celebrate and be thankful for!!

    3 Comments
  7. 7
    about 4 years ago
    lawcreate's Avatar

    Other

    Procedure or Surgery

    I went in to have an ovary removed (complex cyst) and found malignant tissue surrepitiously (sp?) in my cervix/uterus. Ended up with total hyst, 12 lymph nodes removed, cerv cancer on my ovary and a nicked bladder. Surgeon labled me Stage 1B. went for a second opinion at a well respected hosp and stayed with them. I was relabeled Stage 4 since the same cncer in my cervix was found on my ovary. All nodes and margins clear however my wash was pos. THus an unbelievable profalactic (sp?) treatent is about to start.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments