melanomamama's Journey:

Patient: Skin Cancer - Melanoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 31 years ago, Female, Age: 74, Stage IV, BRAF mutation positive: Don't Know, c-kit positive: Don't Know

  1. 1
    over 8 years ago
    melanomamama's Avatar

    Wide excision, 1990, bowel surgery, 2008, surgery on buttocks, 2009, two brain surgeries, 2012

    Procedure or Surgery

    I am living in constant uncertainty, and I am always in recovery from my various procedures. Quality of life between treatments and surgeries has been special because I insist on living with exuberance in spite of my constant struggles. For more on how I cope joyously, see my book, Melanoma Mama: On Life, Death, and Tent Camping

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
  2. 2
    almost 7 years ago
    melanomamama's Avatar


    This past Thursday I had great fun being interviewed for a second time by Don Baham for his cable access TV program, The Dr. Don Show. We talked again about my book, Melanoma Mama: On Life, Death, and Tent Camping, and also about some of my more recent experiences at the bedside of friends who were dying. In spite of the heavy subject matter, we spent much of the program laughing together. I got a nice haircut that morning, and I had my makeup done at the Estee Lauder counter at Macy's that afternoon, so I think I looked spiffy for the occasion. I had given him some suggested interview questions, but I had no idea which ones he would pick, or in what order. He also came up with some unexpected questions of his own, so I had to scramble for some of the answers, but I'm not too embarrassed by the outcome. The program is already posted on You Tube at . It runs 55 minutes. It will also be shown on local Portland television several times, with a rather complex schedule: Thursday, June 19th/9 pm/Channel 11 Friday/8 pm/Channel 21 Saturday/3:30 am, 9 am/Channel 21 Sunday/3 pm/Channel 21 ¬¬Channel numbers listed here are Comcast subscriber channels. Verizon subscribers can view show only on Tuesday at 11pm on Verizon Channel 22.

    1 Comment
  3. 3
    over 8 years ago
    melanomamama's Avatar

    Cancer has spread/Metastasized

    Oh No

    Mole (melanoma) removed in 1990. Metastacized in 2008 requiring 5 more surgeries (2 brain), 2 radiations, 2 immunotherapies (IL-2 and ipilimumab). My book, Melanoma Mama: On Life, Death, and Tent Camping reveals my struggles and my joys.