ChristyC's Journey:

Survivor: Brain and Spinal Cord Tumors in Adults > Medulloblastoma

  1. 1
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
  2. 2
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    External radiation

    Radiation

    6 weeks of intensive radiation therapy on back of head; started end of April or in May.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Early March of 1983, had brain surgery at Mayo Clinic in Rochester Minnesota. The tumor was biobsied and found cancerous.

    Procedure or Surgery

    Tumor and I believe spinal ventricle were removed.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    After I think a month to 6 week break I started intense experimental chemotherapy. I recieved oral and intravenous treatment for I think about a year and a half until my white count was too low to continue.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Side Effects

    Bad balance

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  6. 6
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Side Effects

    very sensitive stomach

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  7. 7
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Side Effects

    Memory problems, predominantly short term memory problems.

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  8. 8
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Side Effects

    Constant ringing in my right ear.

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  9. 9
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
    ChristyC's Avatar

    Side Effects

    Nervous system problems

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  10. 10
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Anniversary

    Celebration

    10 year mark in 1993

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  11. 11
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Surgery

    Procedure or Surgery

    This tumor was on the brain not in it. My neurosurgeon was quite certain that the tumor was a late affect from the radiation treatment. I now have a titanium plate in my skull to replace the bone that had to be cut out to get at the tumor. This tumor was located over the main sinus, and since this surgery I have had constant sinus pressure which sometimes gets very bad. The sinus presssure is affected by barometric pressure

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  12. 12
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Anniversary

    Celebration

    20 year mark in February 2003

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  13. 13
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Side Effects

    This person has yet to add any details about this experience.

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  14. 14
    • ChristyC
    • Experience with Medulloblastoma
    over 4 years ago
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    Anniversary

    Celebration

    30 year mark in 2013

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