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Ellie59's Journey:

  1. 1 Oh No Icon Oh No
    Misdiagnosed
  2. 2 Procedure or Surgery Icon Procedure or Surgery
    Implant c...
  3. 3 Drug or Chemo Therapy Icon Drug or Chemo Therapy
    Chemotherapy
  4. 4 Radiation Icon Radiation
    External ...
  5. 5 Side Effects Icon Side Effects
    Bone thin...
  6. 6 Side Effects Icon Side Effects
    Anemia (l...
  7. 7 Other Care Icon Other Care
    Psychosocial
  8. 8 Celebration Icon Celebration
    ???
  9. 9 Celebration Icon Celebration
    ???

Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Mantle Cell Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 7 years ago, Female, Age: 65, Stage IV

  1. 1
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    almost 5 years ago
    Ellie59's Avatar

    Misdiagnosed

    Oh No

    My original Oncologist with great certainty it was worse case low Grade Lymphoma. He was wrong it was Mantle Cell

    1 Comment
  2. 2
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    almost 5 years ago
    Ellie59's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Some after surgery discomfort was fine after 48 hours. Needed pain meds that long

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    almost 5 years ago
    Ellie59's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had high dose chemo followed by a stem cell transplant. Very challenging treatmeant. Severe weakness pain...

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    almost 5 years ago
    Ellie59's Avatar

    External radiation

    Radiation

    Lost control of some of my bodily functions. Very weak and fatique

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    almost 5 years ago
    Ellie59's Avatar

    Bone thinning (osteoporosis)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    almost 5 years ago
    Ellie59's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Had to have stomach injections to bring my count up

    0 Comments
  7. 7
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    almost 5 years ago
    Ellie59's Avatar

    Psychosocial

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    over 4 years ago
    Ellie59's Avatar

    Celebration

    2 years post stem cell transplant for mantle cell lymphoma. Just had another clean scan!! Go to once a year scans now!! Yahoo!!

    4 Comments
  9. 9
    • Ellie59
    • Experience with Mantle Cell Lymphoma
    over 1 year ago
    Ellie59's Avatar

    Celebration

    5 year Scan is Clear!!! Mantle Cell Lymphoma, and stem cell transplant Survivor. Happy Birthday to me!!!! You can survive this cancer!

    4 Comments