Ellie59's Journey:
- 1 Oh No Icon Oh No
- 2 Procedure or Surgery Icon Procedure or Surgery
- 3 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 4 Radiation Icon Radiation
- 5 Side Effects Icon Side Effects
- 6 Side Effects Icon Side Effects
- 7 Other Care Icon Other Care
- 8 Celebration Icon Celebration
- 9 Celebration Icon Celebration
Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Mantle Cell Lymphoma
Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 9 years ago, Female, Age: 68, Stage IV
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Misdiagnosed
Oh No
My original Oncologist with great certainty it was worse case low Grade Lymphoma. He was wrong it was Mantle Cell
Implant chemotherapy port
Procedure or Surgery
Some after surgery discomfort was fine after 48 hours. Needed pain meds that long
Chemotherapy
Drug or Chemo Therapy
I had high dose chemo followed by a stem cell transplant. Very challenging treatmeant. Severe weakness pain...
External radiation
Radiation
Lost control of some of my bodily functions. Very weak and fatique
Bone thinning (osteoporosis)
Side Effects
This person has yet to add any details about this experience.
Anemia (low red blood cell counts)
Side Effects
Had to have stomach injections to bring my count up
Psychosocial
Other Care
This person has yet to add any details about this experience.
Celebration
2 years post stem cell transplant for mantle cell lymphoma. Just had another clean scan!! Go to once a year scans now!! Yahoo!!
Celebration
5 year Scan is Clear!!! Mantle Cell Lymphoma, and stem cell transplant Survivor. Happy Birthday to me!!!! You can survive this cancer!