Jbean's Journey with Metastasizing Mixed Tumor

Patient: Head & Neck/Throat Cancer > Salivary Gland Cancer > Malignant Mixed Tumor > Metastasizing Mixed Tumor

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 7 years ago, Female, Age: 41, Stage IV

  1. 1
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
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    Surgery

    Procedure or Surgery

    Thorocotosternotomy with right radical resection of mediastinal mass. The laryngeal nerve needed to be cut in order to remove the tumor that encompassed it, leading to permanent vocal cord damage with temporary loss of my voice and difficulties swallowing all unthickened liquids.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
    Jbean's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had positive margins following thoracic surgery. As a preventative measure, underwent 4 cycles of etoposide & cysplatin with simultaneous radiation to my chest.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
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    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
    Jbean's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    One of the best decisions I made. I use it all the time!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  5. 5
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
    Jbean's Avatar

    Cancer has spread/Metastasized

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
    Jbean's Avatar

    Monthly Sandostatin IM Injections for Carcinoid

    Drug or Chemo Therapy

    Dose has been increased over time, but continue to get each month.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Targeted therapy with Sutent

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  8. 8
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
    Jbean's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Taken off of Sutent. Started targeted therapy with Affinitor. Carcinoid metastasized to my liver.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    1 Comment
  9. 9
    • Jbean
    • Experience with Metastasizing Mixed Tumor
    almost 4 years ago
    Jbean's Avatar

    Chemoembolization x 2 to get both lobes of liver.

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments