marmalisa's Journey:

Patient: Vulvar Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 4 years ago, Female, Age: 36

  1. 1
    about 4 years ago
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    Work problems

    Oh No

    Results of biopsys were confirmed vulvar cancer on January 18th 2013. Original plan was surgery on Jan 31, 2013. Oncologist also confirmed anal & rectal(+cervical) cancer was clearly present. Surgery was not preformed due to extent of cancer. The problem with work was that I couldn't do it much longer bec of upcoming treatments. Leads to financial complications.

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  2. 2
    about 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    I had the Power Port put in Feb 19th 2013. For the first few 5 days I had little pain. After that I have had internal pain but my incisions seem to be healing properly. Also, had a mass removed (needle localization) in left breast that turned out to be benign.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    about 1 year ago
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    Infection

    Side Effects

    An infection occurred from the biopsy procedure (and a tooth infection, tooth pulled). These things and finding 2 Dr's that would take my insurance(and would work together) prolonged my treatment.

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  4. 4
    about 1 year ago
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    treatment

    Decision Point

    Really decided that chemo/radiation would be best being that the radical surgery to remove my vagina(+tumor & other areas) was not an option due to the extent of areas the cancer was spread(acc. to gynecological oncologist.) It would work faster than any other ideas that the world around me was coming up with. They all sounded good, but it was already in my left groin lymph nodes.

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  5. 5
    about 1 year ago
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    Chemotherapy

    Drug or Chemo Therapy

    1st day of chemo was April 15, 2013. Meds were mitomycin and FU5 pack. Did the mitomycin drip at chemo room and wore the FU5 pack home (got it on a Monday, got it off on the following Friday.) Chemo caused SEVERE dry mouth, cold sweats, cancer area came alive and was very painful & uncomfortable, feverish, red and hot skin, mouth sores (swish and swallow).

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    about 1 year ago
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    External radiation

    Radiation

    Started radiation treatment April 19, 2013. While lying on the table is the easy part, the after effects ARE NOT!

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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