Heidi's Journey with Cervical Cancer

Patient: Cervical Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Female, Age: 32, Stage IV

  1. 1
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Diagnosed

    Oh No

    I went back to my OB after a couple months of hospital visit's and embarrassing OBGYN visit's, for a female Doctor to take one look at my cervix as she is trying to get a Biopsy and as she gets up from "down there" she informs me " You have cancer" and proceeds to leave the room, leaving me trying to sit up and sobbing.

    1 Comment
  2. 2
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Radical hysterectomy

    Procedure or Surgery

    This didn't work.... I was opened up but left with all my "lady" parts... when I woke up and was told I was devastated.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Cancer has spread/Metastasized

    Oh No

    Find out that there was to much cancer to even attempt to take out and that there was a melon sized tumor sitting on my uterus pushing against my bladder and rectum.

    0 Comments
  4. 4
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This was one of the 2 most painful things ever. The recovery was horrible.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started chemo for 6 rounds. Once a week, I lost 50 pounds VERY quickly. I stopped eating, my family had to force feed me, I stopped drinking and on top of the fluids I was getting with chemo I also had to come once a week and get more because I got to the point I was pretty much in a wheelchair.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. 6
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    External radiation

    Radiation

    This was a daily event for me for 35 treatments while I was doing chemo. It was painless but embarrassing because I had lay face down with my back end showing. I am 8 months out from that and I still had side effects from it.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. 7
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Cancer has spread/Metastasized

    Oh No

    Went for an MRI and CT scan to have a good picture to base the radiation field off of from these test I found out I had stage 4 cancer, it was also in my liver and lungs now.

    0 Comments
  8. 8
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Finished treatment

    Celebration

    Finished chemo and external radiation and the cancer reacted very good to the treatment.

    0 Comments
  9. 9
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    brachly tube placement

    Procedure or Surgery

    This made me feel like I was in labor 24 hours a day until it was removed.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  10. 10
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Internal radiation (Brachytherapy)

    Radiation

    This was the most horrible, painful, and embarrassing experience of my life. After 3 of these 4 hour procedures I could no longer so them because they where not working.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
  11. 11
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    brachly tube removal

    Procedure or Surgery

    I was soooo thankful.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  12. 12
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Cancer has spread/Metastasized

    Oh No

    I was in and out of the er for the 2 months I was without treatment. They kept telling me I had bronchitis but the last time the did a CT like all the other times but she compared them and the news was devastating. My tumors in my lung had grew 2 cm I could not lay down with out coughing and not being able to breath. I was bed ridden.

    0 Comments
  13. 13
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This round of chemo I was one 2 of them every 3 weeks for 6 rounds I lost all of my hair and missed a lot of college.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  14. 14
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Remission

    Celebration

    I did my last chemo and went and had CT's done. The news was remission. I went from stage 4 cancer to remission! I cryed but not for the reasons others would cry. I cryed because I know it will come back..... the fear.....Cause I have 2 small girls....and I don't know if I can do this again.

    1 Comment
  15. 15
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Decision Point

    Doc say's he's never treated some one with my cancer the kind and severity. There's no research on it. He is as shocked as I am, so it is my decision on weather to do 2 more e chemo's just to be safe or take a 3 month break and the get retested. I choose the chemo.

    0 Comments
  16. 16
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It's getting easier at this point I have 1 left.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  17. 17
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Blood Transfusion #7

    Other Care

    This will be my 7th blood transfusion. It's supposed to make me feel better but all it does is make me tired and blah but it is a necessary evil. It just takes sooo long. about 6-8 hours for me.

    0 Comments
  18. 18
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Hospitalization

    Other Care

    Spending some time in the hospital getting platelets counts got down to 32. not what I want to be doing but doc says its for the best. My body rejected the platelets, so 3 nose bleeds later I saw an ent and am going to be put on antibiotics for my nose to promote healing.

    0 Comments
  19. 19
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    blood transfusion #8

    Other Care

    I am having number 8 today while I am in the hospital. I am getting 2 units.

    2 Comments
  20. 20
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Cancer is back/Recurred

    Oh No

    I not sure how this happened but I found out today I now have cancer in my lymph node in my sternum. There are not many options at this point but I am going to have a radiation consult and a pet scan if my insurance will approve it.

    7 Comments
  21. 21
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    External radiation

    Radiation

    I am doing the simulation tomorrow and after i will have 10 treaments of radication to my right chest.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    2 Comments
  22. 22
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Other

    Other Care

    Have a petscan tomorrow I have never had one of these so after I will update what it was like.

    0 Comments
  23. 23
    • Heidi
    • Experience with Cervical Cancer
    over 5 years ago
    Heidi's Avatar

    Cancer has spread/Metastasized

    Oh No

    On the pet scan they found more cancer in my pelvic area. There is no longer any thing they can do for me. I start hospice treatment tonight...

    19 Comments
  24. 24
    • Heidi
    • Experience with Cervical Cancer
    about 5 years ago
    Heidi's Avatar

    Cancer has spread/Metastasized

    Oh No

    Started progressing backwards in every way possible and almost went into a coma. My blood count was 5. Stayed some time at the hospital to find out I now have cancer in my brain and my time here is going to be short.

    0 Comments
  25. 25
    • Heidi
    • Experience with Cervical Cancer
    about 5 years ago
    Heidi's Avatar

    External radiation

    Radiation

    I am doing whole brain radiation every day for 15 days just to give me some more time with my kids.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    1 Comment