Outlier's Journey:

Survivor: Hodgkin Disease > Classic Hodgkin Disease

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: about 34 years ago, Male, Age: 64, Stage III

  1. 1
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    Fear of dying from the cancer. Twice

    Oh No

    1987: Prior to this first diagnosis of HL I had never been seriously or even broken a bone. My wife and I had only been married 6 years, and our son was just two years old. I was afraid of the unknown. In 1989, the HL returned. I thought "this time I'll die."

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  2. 2
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    Surgery

    Procedure or Surgery

    1987: Biopsy at neck; Stanford Staging Laparotomy. 2014: Aortic Heart Valve replacement.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    External radiation

    Radiation

    In 1987, After (mostly) being recovered from diagnostic surgery I had 50 radiation treatments.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    Taste change/loss

    Side Effects

    First bout of Hodgkin's lymphoma (HL): I had 50 radiation treatments; loss of sense of taste (later returned); sunburn like redness to skin; weight loss; fatigue. Second dx of HL.: In 1989, I underwent chemotherapy. I experienced nausea. I experienced depression came over the course of therapy,

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  5. 5
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    Remission

    Celebration

    November 1989, remission

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  6. 6
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    I radically changed my diet. I began training for road cycling races.

    Decision Point

    The year after gaining remission from my first bout of HL my wife, myself and our young son moved to San Diego County, California to start at new beginning.

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  7. 7
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    Loss

    This person has yet to add any details about this experience.

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  8. 8
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 8 years ago
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    Loss

    This person has yet to add any details about this experience.

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  9. 9
    • Outlier
    • Experience with Classic Hodgkin Disease
    almost 6 years ago
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    Surgery

    Procedure or Surgery

    Aortic Heart Valve replaced: 12-10-14.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    2 Comments
  10. 10
    • Outlier
    • Experience with Classic Hodgkin Disease
    almost 6 years ago
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    Birth

    Celebration

    On 11-20-14, our very first grandchild was born. Gift of life! On August 27th, 2017 our second grandchild was born.

    1 Comment
  11. 11
    • Outlier
    • Experience with Classic Hodgkin Disease
    almost 6 years ago
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    Side Effects

    This person has yet to add any details about this experience.

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  12. 12
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 3 years ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  13. 13
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 3 years ago
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    Loss

    This person has yet to add any details about this experience.

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  14. 14
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 3 years ago
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    Oh No

    This person has yet to add any details about this experience.

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  15. 15
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 3 years ago
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    Late Effects

    Oh No

    Late effects from radiation include heart valve and lung disease, and hypothyroidism. Comorbidities include congestive heart failure, ME (Myalgic Encephalophathy/CFS (Chronic Fatigue Syndrome), chronic kidney disease, obstructive sleep apnea, hypertension, and cognitive change (white matter disease.)

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  16. 16
    • Outlier
    • Experience with Classic Hodgkin Disease
    about 3 years ago
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    Decision Point

    This person has yet to add any details about this experience.

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  17. 17
    • Outlier
    • Experience with Classic Hodgkin Disease
    over 2 years ago
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    Decision Point

    “Feel Strong” _______________ Saturday I returned home after participating in the week-long adult cancer survivor adventure camp in Colorado sponsored by www.epicexperience.org It was a challenging experience indeed. The shortness of breath I live with at home was compounded by the over 8,000 foot elevation of camp. However, at the same time the trip was rewarding, as I was able to complete each activity during the week. If you, or someone you know, is an adult cancer survivor, I encourage to review the Epic Experience website. If you have any questions about Epic or my experience feel to send me a message via Fb messenger, or send an e-mail to [email redacted] Take care, Glen D. Kirkpatrick ...the sea's only gifts are harsh blows and, occasionally, the chance to feel strong. Now, I don't know much about the sea, but I do know that that's the way it is here. And I also know how important it is in life not necessarily to be strong but to feel strong, to measure yourself at least once, to find yourself at least once in the most ancient of human conditions, facing blind, deaf stone alone, with nothing to help you but your own hands and your own head... (Primo Levi, Holocaust Survivor, July 31-1919 - April-11-1987)

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