pattiep's Journey with Mixed Tumors, Breast Cancer

Patient: Breast Cancer > Mixed Tumors

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 52, Stage I, HER2 Positive: Yes, ER Positive: No, PR Positive: No

  1. 1
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Misdiagnosed

    Oh No

    Told I had dense breast tissue and to wait 6 months- lump smaller than a pea. After 6 months most of breast big lumps and red nipple discharge. Told to wait 6 more more months

    1 Comment
  2. 2
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    To wait 6 more months or not

    Decision Point

    I chose to see a breast surgeon and had biopsies

    1 Comment
  3. 3
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Diagnosed with DCIS

    Oh No

    should have expected it - but never thought it would happen to me

    1 Comment
  4. 4
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Mastectomy

    Procedure or Surgery

    Still recovering (later note - fast recovery but found out I needed chemo unexpectedly)

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  5. 5
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    was told day after surgery that everything was great and I wouldn't need further treatment

    Went as Expected: Strongly Disagree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
  7. 7
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Breast Reconstruction (Implant)

    Procedure or Surgery

    Just started -expanders

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    My choice to have chemo

    Decision Point

    But was it really?? Her2neu(?) considered very high for size of invasive tumors

    1 Comment
  9. 9
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    start next week- terrified since they said it will be painful Later note - not painful. Fatigue unreal. Some bone pain. Stayed on couch the entire time

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  10. 10
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Misdiagnosed

    Oh No

    had Pagets, luckily had entire breast removed. Invasive tumors found in post surgery pathology. I was stunned and need chemo

    1 Comment
  11. 11
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Hurts way more than I expected

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  12. 12
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    starting next week TCH, H, H for 18 weeks followed by year of just Herceptin

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    2 Comments
  13. 13
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    almost 4 years ago
    pattiep's Avatar

    My mind/Sense of Humor

    Loss

    Control. Worried about work. Worried about money. It is vain but I don't want to lose my hair or stop having my nails done. I had a great attitude about my mastectomy - very upbeat, alot of jokes, really don't mind losing the breast. Cannot deal with the chemo. The side effects horrify me. I don't know if I should try to work. All I can do is cry. Went for "chemo counseling" today and I wish I didn't. I'd rather I just found out as I went a long.

    1 Comment
  14. 14
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    over 2 years ago
    pattiep's Avatar

    Many listed but eyes- are the worst.

    Side Effects

    tear ducts, dry eye, corneas, eyelashes growing inwards

    2 Comments
  15. 15
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    over 2 years ago
    pattiep's Avatar

    Surgery

    Procedure or Surgery

    2 eye operations Sept 2013 and Oct. 2014. First one easy peasy. Last one difficult. Tired and eyes stitched, bruised face -feel like a mess

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  16. 16
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    over 2 years ago
    pattiep's Avatar

    Feel chronically depressed /like crying. Can't deal with ongoing chemo side effects

    Oh No

    Had bad moments in the past but now everything is actually going well (with cancer issues) and I feel so very down. The chemo side effects just seem never ending. I don't know if I would have agreed to taxotere if I knew all of these things would happen to my eyes. Feel like I have to keep a stiff upper lip- after all I was pretty upbeat during the "bad" parts so now I should be happy! Except...

    2 Comments
  17. 17
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    about 1 year ago
    pattiep's Avatar

    Side effects from chemo -ongoing with my eyes 2.5 years later

    Oh No

    Dry eye, blepharitis, lashes growing wrong direction, procedures to force lashes correct was a fail. Stents in tear ducts have closed over

    1 Comment
  18. 18
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    about 1 year ago
    pattiep's Avatar

    eyes are a mess.

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  19. 19
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    about 1 year ago
    pattiep's Avatar

    My mind/Sense of Humor

    Loss

    Freaking out about eye surgery. Another anesthesia event. I hate it! I am pretty sure my eyes will be uncomfortable and unattractive forever. And I will be giving school conferences with black eyes again. Parents are never going to believe I'm not a victim of domestic violence (maybe I have some sense of humor left)

    2 Comments
  20. 20
    • pattiep
    • Experience with Mixed Tumors, Breast C...
    about 1 year ago
    pattiep's Avatar

    Surgery

    Procedure or Surgery

    Having surgery on 2/12. New stents in eyes to force open tear ducts. Grafting skin from cheek to eyelid to keep backwards lashes from touching eye. Going to be a long 3 months of block ducts while stents work = tears running down my face like right after chemo. Taxotere I hate what you've done to my eyes.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment