LyndaH's Journey with Squamous Cell Carcinoma, Oral Cavity ...

Patient: Head & Neck/Throat Cancer > Oral Cavity and Oropharyngeal Cancer > Squamous Cell Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 4 years ago, Female, Age: 54

  1. 1
    • LyndaH
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
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    First diagnosis

    Oh No

    I had a sore in my mouth for about nine months. After some time of it not healing I was recommended to go to a dentist. I went and they would not touch me so then they referred me to University of Michigan hospital. Once there they told me I would need a biopsy. After that was done we got the news. It was cancer. I had a tumor under my tongue and the cancer had spread into my jawbone and neck.

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  2. 2
    • LyndaH
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
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    Surgery

    Procedure or Surgery

    WLE floor of mouth and anterior mandible with bilateral neck dissection, direct laryngoscopy, fibular free flap. Surgery went as expected. The tumor under my tongue was removed and my jawbone was replaced with my lower leg bone. There was cancer in my neck that was removed and lymph nodes were removed from both sides of my neck. I had trouble with skin irratation at the incision sites due to sensitive skin. I also had much discomfort with the tracheostomy which had to be tolerated until time of removal three months after surgery.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • LyndaH
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
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    External radiation

    Radiation

    Treatment five days a week for six weeks. I had trouble with the comfort in my face mask making due to my tracheostomy. The team was able to create a special head rest that made it possible to lay down face up and breathe comfortably during radiation treatments.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • LyndaH
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
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    Finished treatment

    Celebration

    Finished Radiation treatment! I had treatment five days a week for six weeks!

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  5. 5
    • LyndaH
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
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    Lymphedema

    Side Effects

    I had a lot of issues with swelling in my chin, neck and ear areas. I had temporary hearing loss and some bleeding and fluid behind my ears. Lymphedema Therapy has helped with the fluid in my neck and chin area. My therapist had me order a compression mask that wraps around my head and chin and around my neck. She also make me a custom made compression with stretchy material and cloth bags filled with foam chips. When the foam chips are held on my chin and neck with elastic material and velcro, snug but not too tight, it softens up the area and relieves the swelling and pressure.

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  6. 6
    • LyndaH
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
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    Pain

    Side Effects

    I continue to have pain in my neck and shoulders seven months after surgery. Physical Therapy helps with the pain and has corrected some movement in my arms and shoulders.

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  7. 7
    • LyndaH
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
    LyndaH's Avatar

    Speech and Physical Therapy

    Other Care

    Seven months after surgery I am in speech and physical therapy. I received a prosthesis for my mouth to help with speech. The physical therapy I have received has helped me regain almost full motion of my arms and shoulders.

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