hiho's Journey with Tall Cell, Papillary Carcinoma

Survivor: Thyroid Cancer > Papillary Carcinoma > Tall Cell

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 7 years ago, Female, Age: 57, Stage I

  1. 1
    • hiho
    • Experience with Tall Cell, Papillary Carc...
    almost 4 years ago
    hiho's Avatar

    I had problems with swallowing, pressure on neck for a while. I knew something was wrong but felt silly trying to describe it to my Doctor. I had an uptake scan and it came back normal...I told my Doctor "I know there is something going on better send me

    Oh No

    I was very confused and scared at this point and my family was very upset and scared too. Everyone kept telling me it was the "best" kind of cancer to have. I didn't really understand this. It was still a cancer diagnosis.

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  2. 2
    • hiho
    • Experience with Tall Cell, Papillary Carc...
    almost 4 years ago
    hiho's Avatar

    Surgery

    Procedure or Surgery

    The surgery was as expected. I was however very upset before going in for surgery. I had surgery before but this was different somehow. I was afraid they were going to have to cut my neck up to my ears. Very bad anxiety. I came out of surgery not able to speak very well. It took a while for my voice to come back. Even now it is weak and gravelly.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • hiho
    • Experience with Tall Cell, Papillary Carc...
    almost 4 years ago
    hiho's Avatar

    Internal radiation

    Radiation

    I had a severe reaction to radiation (I131). I swelled up, especially in my face. I looked like a chipmunk with his cheeks full of nuts. I also turned blue all over. I was very emotional and tired.

    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • hiho
    • Experience with Tall Cell, Papillary Carc...
    almost 4 years ago
    hiho's Avatar

    Allergic reaction

    Side Effects

    Turns out I was allergic to some carrier they thought in the pill that I took containing radiation.

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  5. 5
    • hiho
    • Experience with Tall Cell, Papillary Carc...
    almost 4 years ago
    hiho's Avatar

    Internal radiation

    Radiation

    At my next checkup (6 months) I had a small dose of radiation for a whole body scan. the scan showed a residual amount of tissue, cancer ? I'm not sure what but they recommended another treatment dose of radiation. This time they gave me a round of medrol before they administered the radiation dose. The experience was better but still not great, my salivary glands took a hit. They hurt and burned.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • hiho
    • Experience with Tall Cell, Papillary Carc...
    almost 4 years ago
    hiho's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Disagree
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