anskysue's Journey with Leiomyosarcoma

Patient: Endometrial (Uterine) Cancer > Leiomyosarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 48, Stage IV

  1. 1
    • anskysue
    • Experience with Leiomyosarcoma
    about 4 years ago
    anskysue's Avatar

    Oh No

    Diagnosed on September 4 with "cancer" after they found a grapefruit sized mass in my abdomen. Saw Oncologist on 9/14 and scheduled for surgery on 9/17. Oncologist thought it was ovarian cancer (I had one ovary left after a hysterectomy the summer before). During surgery, ovary was fine. Diagnosed with Leiomyosarcoma two days later after pathology report came back, stage IV because it had spread to my lungs.

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  2. 2
    • anskysue
    • Experience with Leiomyosarcoma
    about 4 years ago
    anskysue's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started chemotherapy clinical trial on November 1. Chemo is in three week cycles - I go on Tuesday, the next Tuesday and then off a week. Am currently in my 7th round. Tumors in lungs are shrinking - Thank you God.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • anskysue
    • Experience with Leiomyosarcoma
    almost 4 years ago
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    Surgery

    Procedure or Surgery

    Had a video assisted thoractomy to remove tumors in my lungs. Woot!!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • anskysue
    • Experience with Leiomyosarcoma
    over 3 years ago
    anskysue's Avatar

    Remission

    Celebration

    NED as of August! Will have quarterly scans but I am feeling great and hair is coming back!

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