AngieJ's Journey:

Patient: Colorectal (Colon) Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 59, KRAS mutation positive: No, BRAF mutation positive: No, Stage IV

  1. 1
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    about 4 years ago
    AngieJ's Avatar

    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    After abd pain constipation/diarheea nausea ,vomiting ,incontinence since march 31/April 1,2011 on July 15 my gastro dr tried to use a flex sigmoid in office ,but was unsuccessful I was directly admitted for 28 days

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    about 4 years ago
    AngieJ's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    about 4 years ago
    AngieJ's Avatar

    External radiation

    Radiation

    I had 25-28 days of radiation ,I was fine until about the 2&1/2 -3 rd wk then it was pain ,weakness but I was determined not miss &. Finish radiation ,& I did !

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    about 4 years ago
    AngieJ's Avatar

    Pain

    Side Effects

    I had abd pain,fatigue

    0 Comments
  5. 5
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    almost 4 years ago
    AngieJ's Avatar

    Small bowel obstruction ,gall bladder

    Procedure or Surgery

    Had severe pain abd ,nausea vomiting,poss sm bowel obs N/G tube 3-4 days ,then gall bladder removal ,d/c home 6 th day ,my pain was severe in my legs,muscular ,I had walked frequently in hospital with no problem ,I could barely stand up or walk pain so severe. Not sure it was side effect of antibiotics,gall bladder incisions were bigger than laparoscopic ,but not open

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 6
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    almost 4 years ago
    AngieJ's Avatar

    Ct scan shows nodules in both lungs

    Oh No

    Ct shoes nodules in both lungs ,not big enough to biopsy . Dr Scheduled 6 wk repeat ct ,after a few days I freaked out I wanted to get a 2nd opinion @ Mayo clinic .my ins co told me how to do this. Worked a wk calling arranging trip .the day before I went my ins co said I needed a dr referral ,& said they would let me know if I was approved by 5pm on Friday before Labor Day ,they called my cell phone 5 mins before they closed & hung up after 3 rings,leaving no msg ,earlier I the day a nurse from my oncologist office called me & said the ins co. Called her & told her they wouldn't pay for a trip to Mayo. the ins dept.@ Mayo had told me I was covered ins told mayo they rather me go to university of Ky. I decided I am going to Mayo. I need assurance that I need their opinion for my peace of mind . I called the ins co. Back & left msg saying I would gladly go to u of ky onMonday ,I also said if I didn't get a call back confirming a visit to u of ky I would be in Rochesteter Mn. My husband felt like I was jumping the gun. But I was so scared since my diagnosis in 2011 ,I told my husband Mayo clinic wasn't in the business to authorize treatment for payment ,& I said I am going anyway . So we flew out & was scheduled for tests & oncologist colo/rectal specialist. Oncologist lung specialists .had pet scan. Ct scan colo/-rectal specialist agreed with my Ky. Oncologist ,not big enough to biopsy lung nodules ,no mets found ,I was a happy camper relieved, better safe than sorry . By the way primary ins covered the visit. & I have Medicare as secondary

    0 Comments
  7. 7
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    almost 4 years ago
    AngieJ's Avatar

    Colostomy

    Procedure or Surgery

    Colostomy & skin around it became irritated from thin stools ,painful . Went to surgeon . Had colonoscopy through ostomy had stricture surgeon revised stoma, now it is under skin level of course it got infected went to ER it was swollen ,hot,read & I wouldn't put a bag on until I was free from severe pain ,which was hrs. Iv antibiotics & dilaudid for 141 days,d/c home I asked for a ostomy specialist & was blessed when my home health nurse had 40 yrs of experience , after 2 months I was healed & was tAught irrigation. ,worked great for 4 months,saw dr few months later ,he suggested I lay on floor to irrigate, took me 2 wks to try since I have bulging disc ,advanced arthritis ,syrinx of spine I was like a turtle on my back , went back to surgeon in Nov,time for a colostomy & also got egd dilated esophageous. Now I have a outie stoma again. He found a sm. hernia & ended up with 8" incision on my abd. Was suppose to be less than 1" but dr said my bowel is small. My husband & I planned a 2wk vacation in Costa Rica Dec 14. Dr said before surgery I could go ,didn't expect all this staples out 10 days scant amt drainage on bottom 1" of incision ,more antibiotics, 7 days later released ok to get in water on trip. I arrived with filled Rx of antibiotics

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  8. 8
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    almost 4 years ago
    AngieJ's Avatar

    Didn't get ct of. Chest ,will

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    almost 4 years ago
    AngieJ's Avatar

    Other Care

    Didn't get my ct will get it in Jan.next wk

    0 Comments
  10. 10
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    almost 4 years ago
    AngieJ's Avatar

    Ct of chest next wk ,

    Other Care

    If nodules haven't grown ,then it probably not metastasize

    0 Comments
  11. 11
    • AngieJ
    • Experience with Colorectal (Colon) Cancer
    almost 4 years ago
    AngieJ's Avatar

    Dr did not heckle me he checked me,lol have to laugh @ spell check

    Other Care

    This person has yet to add any details about this experience.

    0 Comments