agrogan's Journey:

Patient: Colorectal (Colon) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 54, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage Recurrent

  1. 1
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 5 years ago
    agrogan's Avatar

    Oh No

    I was diagnosed with metastatic colon cancer to my liver. I had a colon resection in 2008 where I was told the cancerous tumor had not spread to the lymphnodes or crossed the colon wall. In the summer of 2011 on a trip to Florida, I had a very strong pain on my right side and was nauseous. I stoped at an ER if Florida after several tests including an abdominal ultrasound, they couldn't find the reason of the pain ( the ultrsound results were compleatly wrong as I found out later). After several trips to the doctor who beleived I had passed a goldstone, the abdominal ultrasound was repeated, it was found I had a mass in my liver and was metastazied colon cancer.

    0 Comments
  2. 2
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 5 years ago
    agrogan's Avatar

    Surgery

    Procedure or Surgery

    The right side of my liver was removed. The surgery went fine. I was given an epidural for the pain before surgery and was kept in place for 4 days. This made my recovery much easier and the pain was minimal. I started walking the next day. The pain after my laproscopic colon resction in 2008 was terrible. The recovery took about 8 weeks and I was still in some pain when I tried to vacum the house. It's been about 4 months since the surgery and I am back to normal only a little of numbness arround the scar.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 5 years ago
    agrogan's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I started chemo ( FOLFOX, AVASTIN and OXILAPLATIN ) the first week of January 2012. I've had 4 out of 12 cycles completed. The most bothersome side efect has to be the sencitivity to cold I live in Michigan and even though it's been a mild winter the sencitivity gets worse after each cycle. I am part of a blind study to see if Calcium Magnesium inproves the neuropaty, I don't know if I am part of the plasibo group but it hasn't worked. I started taking vitamin B12 and it improved the neuropathy greatly.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 5 years ago
    agrogan's Avatar

    Clinical Trial

    I am on a clinical trial to see if an infusion of calsium and magnesium will help with the side effects of Oxilaplatin.

    0 Comments
  5. 5
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 5 years ago
    agrogan's Avatar

    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 5 years ago
    agrogan's Avatar

    Low platelet counts (thrombocytopenia)

    Side Effects

    I had to pospone my 5th cycle of chemo because my platelet count was low. I hope this doesn't happen again so I don't have to receive chemo after June.

    0 Comments
  7. 7
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 5 years ago
    agrogan's Avatar

    Hand foot syndrome

    Side Effects

    The skin on the bottom of my feet is peeling off. It happend before 2 cycles ago, but it wasn't painful, my feet were sore but Ok. This time it was very painful and I could bearly walk. I found a remedy that took the pain away almost immediatly and has been healing my feet. I can walk again but not ready to take any walks soon. If you are interested in the remedy please research Tepezcohuite all info is on the web, all I can say it helped me. I used the powder mixed with a lotion for my feet.

    0 Comments
  8. 8
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    agrogan's Avatar

    Finished treatment

    Celebration

    Finished last round of chemotherapy on Friday. Still have lingering neuropathy in hands and feet. My hands are painful and peeling a bit.

    2 Comments
  9. 9
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    agrogan's Avatar

    Birthday

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • agrogan
    • Experience with Colorectal (Colon) Cancer
    about 4 years ago
    agrogan's Avatar

    Removal of chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments