Reader21's Journey:

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 56, Stage III, HER2 Positive: Yes, ER Positive: Don't Know, PR Positive: Don't Know

  1. 1
    • Reader21
    • Experience with Invasive Lobular Carc...
    about 4 years ago
    Reader21's Avatar

    Misdiagnosed

    Oh No

    I went to get my regular mammogram and it came clean, but I started experiencing pain in my right breast, I assume they hurt me when they took the x ray, but then my nipple started inverting, so I went back to my gynecologist and they send me to do a sonogram, the Dr. said It was fine, there was nothing there and just keep an eye on it. So I went home and did not worry anymore, but a nurse practitioner who saw my breast call me and asked me to go see a surgeon and she was very insistent. I went to see a surgeon who sent me to get an MRI when the results came back he said there was three areas of concern on both breast, then he sent me to do biopsies and when the results came back I could not believe it. I had a stage III tumor on my right breast in the lobule 5 1/2 cm and two on my left breast ductal 2 and 3 cm stage II. and they were all cancer.

    0 Comments
  2. 2
    • Reader21
    • Experience with Invasive Lobular Carc...
    about 4 years ago
    Reader21's Avatar

    Double Mastectomy

    Procedure or Surgery

    The surgery went fine, stayed on day in the hospital, but the nurses did not show me the proper way to measure the drains, they would place all of the liquid in one measuring cup and when I went home I kept doing the same. When I went to see the surgeon to remove the drains 8 days later he said each drain (I had four) had to be measured individually and he could not remove the drains so I had to have them for 8 more days which is very uncomfortable. It could have been prevented if they had given me the right instructions.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • Reader21
    • Experience with Invasive Lobular Carc...
    about 4 years ago
    Reader21's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was given two med for the first 3 months, once every three weeks (doxorubicin and cyclophosphamide). It gave me severe nausea and vomiting for the first two days, nausea and heart burn for the next 10 days, and nausea meds gave me constipation. Then I was given paclitaxel for the next 3 months once a week. That med was better, it gave me very little nausea, but it did have other side effects, (numbness of my toes, no taste, skin rashes, insomnia, dry mouth. and the steroid made me gain weight

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • Reader21
    • Experience with Invasive Lobular Carc...
    about 4 years ago
    Reader21's Avatar

    I don't know if I want to receive radiation

    Decision Point

    I will be taking the hormone therapy for five years and since I had a double mastectomy and surgery to remove the lymph nodes which came clear I don't see the need for radiation, I just read an article about it and it says that it can cause heart attacks because the radiation damages the arteries so I want to talk to my Dr. and get more info on this matter before I make the decision

    0 Comments