shadymoon2u's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 5 years ago, Male, Age: 45

  1. 1
    almost 5 years ago
    shadymoon2u's Avatar


    Oh No

    I have just been diagnosed with (NHL) at age 40 I am so far a grade2 which I am told means my cancer is both aggressive and slow growing I am in the rare catagory most get one or the other. I am so advanced its in my pelvic region on both sides with growths three fingers in width and about three inches long plus into my neck and around my neck about the size of half ping pong ball size growths. I was told its in my chest area in various areas even though I cannot see or feel them. I have massive pressure pushing on my abdomen and edema that is coming and going in my legs.. I am waiting to take a pet scan and have a biopsy of my bone marrow. My legs get numb quite often and my feet get ice cold and feel wet, even though they are dry. My problem is with my job I work three months on three months off and so on all year its seasonal. The job offered benefits and in two more months I WOULD have been there a FULL year.However, my problem is now that I am diagnosed I cannot return to work in Feb. I am getting unemployment now at 800 month take home. My job is wanting me ASAP now that I HAVE been diagnosed with cancer to fill out my short term disability now i think what happens is my health ins. will run out and I will be left with cobra which with short term disability I will make 50% of my pay (I believe thats how it works) at 12hr take home yet this wont cover the amount of cobra charges a month then there will be co-pays ect. ( I have not even done the bone marrow testing and pet scan to see how bad it is I was told if found elsewhere I will be a stage4) and I haven't even begun treatment yet. I am scared that I will not be able to afford health care rent car ins. ect let alone treatment or yet a good treatment that may could hopefully put this into remission, that instead I will end of dying due to lack of funds and not enough treatment that could maybe save my life. I am alone and my family is dealing with health issues like mine and are in debt with medical bills as well and cannot afford to help me either . I am scared and dont want to die at age 41 or 42 ect. Does anyone know what I am going thru and going thru a similar situation ? Is there any help out there for people like us ? For now I have an oncologist until the end of this month then I will be with health care except Cobra which I cannot afford..........Thanks I am from Phoenix Az ... Eric