deena's Journey with Carcinoid Tumor, Colorectal Cancer
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Patient: Colorectal (Colon) Cancer > Carcinoid Tumor
Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 9 years ago, Female, Age: 63, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage III
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Diagnosed
Oh No
Hi. My name is Deena. I'm a 53 year old single woman who lives alone. I had a colonoscopy yesterday for the first time. It was prompted by two tests that said I had blood in my stool. After the first test, I noticed the blood. After the colonoscopy procedure, the doctor looked very concerned and told me he thinks I may have cancer (there is a lesion). After the biopsy, he called me a couple of hours ago to confirm it is cancer. He instructed me to call the hospital to get lab work and a CT and gave me the number of a surgeon. I called the lab immediately and they are waiting for the order from the doctor. I'll call back in a bit. Of course, I am scared to death. My elderly parents live in Ohio and I live in Illinois. My dad has early dementia and heart problems. My mom is fully blind in one eye and partially blind in the other eye due to a non-cancerous pituitary tumor. Their world revolves around me and I do my best to make sure they get the care they need and call them every other day to cheer up their day. I'm supposed to fly to Ohio this Friday (16th) to spend the holidays with them and they are so happy I am coming. I may have to delay the trip to get all the labs and doctor appointments done before Christmas. I don't know how to tell them. I can't stand the thought of hurting them since they are so fragile. I think I will wait until tomorrow to tell them but I'm afraid I will break down on the phone and that will crush them. My dad is probably the most fragile when it comes to me. Mom is my best friend and she is stronger since she has gone through a lot with her tumor. I don't want to put that burden to fall on her to tell him. If I cry when I talk to them, it will really frighten them. Not sure how I should tell them. I will try my best not to cry but just worrying about their reaction makes me cry. Any suggestions on how I should break the news to them? I am going to schedule the labs and CT scan. Can someone tell me what those entail? Especially the CT scan? Also, once those are complete, what should I expect when I meet with the surgeon I haven't seen yet? What happens at the appointment after she gets my lab and CT results? Thanks sooo much for any answers you can give me. I am a little in shock right now and I am more than a little afraid. Deena
Diagnosed
Oh No
Hi everyone. I think I am over the shock of being diagnosed. I had my CT scans which were much easier than I thought. Met with the surgeon yesterday and I really like her. I still haven't told my parents the whole story yet (that I have cancer). I'm flying to Ohio tomorrow to spend the holidays with them. I've told them I have a lesion that must be removed from my colon. Yesterday, I told Mom I was going to have to have some of my colon removed. I'm not sure they have figured the whole thing out yet but I will give them the whole story when I see them. Baby steps... I am going to schedule the surgery for January 13 (Friday, the 13th!!). The surgeon seems very upbeat so she is making it easier for me. I've been able to talk to my boyfriend (who lives in another state) on the phone without crying. He's even managing to make me laugh. He wants to come and be with me for the surgery. My dad wants to come and stay with me for the surgery too but I think I will ask dad to stay with me at home when I get out of the hospital. Think that will be my plan. I've also told several of my close friends (who live in different states, of course) and they are so supportive and want to come here and help me. So nice to know they would do that. This forum has really helped me see I am not alone. Thank you all.
Colon surgery (colectomy or hemicolectomy)
Procedure or Surgery
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Implant chemotherapy port
Procedure or Surgery
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Chemotherapy
Drug or Chemo Therapy
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Anemia (low red blood cell counts)
Side Effects
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Chemo brain
Side Effects
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Constipation
Side Effects
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Confusion
Side Effects
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Eating problems (anorexia)
Side Effects
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Depression/Anxiety
Side Effects
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Diarrhea
Side Effects
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Fatigue (tiredness)
Side Effects
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Hand foot syndrome
Side Effects
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Flu-like symptoms (fever, chills, sweats)
Side Effects
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Hair loss (alopecia)
Side Effects
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Hot flashes
Side Effects
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Low platelet counts (thrombocytopenia)
Side Effects
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Low white blood cell counts (neutropenia)
Side Effects
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Memory changes
Side Effects
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Mood changes
Side Effects
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Nausea/Vomiting
Side Effects
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Nerve damage (peripheral neuropathy)
Side Effects
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Skin changes
Side Effects
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Taste change/loss
Side Effects
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Thinking problems
Side Effects
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Weight loss
Side Effects
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Finished treatment
Celebration
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Remission
Celebration
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