Mitchqc's Journey with High-Grade Astrocytoma (also called G...

Spouse/Partner: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Male, Age: 50

  1. 1
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
    Mitchqc's Avatar

    Oh No

    November 29, 2012

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  2. 2
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
    Mitchqc's Avatar

    Biopsy

    Procedure or Surgery

    12/5/2012

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
    Mitchqc's Avatar

    Diagnosed

    Oh No

    12/6 grade 4 Right thalamic part of brain Inoperable 2+ inches

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  4. 4
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    6 weeks of temedur taken daily at night. Began 12/15

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  5. 5
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
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    External radiation

    Radiation

    6 weeks radiation Began 12/15/11

    Painless Experience: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
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    Side Effects

    This person has yet to add any details about this experience.

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  7. 7
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
    Mitchqc's Avatar

    Steroids

    Drug or Chemo Therapy

    Lots of steroids

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  8. 8
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
    Mitchqc's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Steroids caused debilitating muscle and joint pain and spasticity. Reduction in dose of steroids helped. Horrible 24 hours of pain and had to use walker.

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  9. 9
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
    Mitchqc's Avatar

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • Mitchqc
    • Experience with High-Grade Astrocytoma...
    over 5 years ago
    Mitchqc's Avatar

    Brain swelling

    Side Effects

    12/9 2am Horrid headache and nausea 911 to nearest hospital. Hospital left a lot to be desired. Horrible experience with on call brain surgeon. A**hole. High dose steroids - 2 overnights

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