jazzhead68's Journey with High-Grade Astrocytoma (also called G...

Spouse/Partner: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 48

  1. 1
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    about 4 years ago
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    Oh No

    January 15, 2013: My wife Heather collapsed at our son's school and was taken to our local ER. A CT scan showed an abnormality in her brain, so she was rushed to Albany Medical Center, about 90 minutes away. After loads of neurological tests, blood work, more scans, etc, a tumor was confirmed. She was given a steroid for swelling and an anti-seizure med and sent home with biopsy appointment a few days later.

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  2. 2
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    about 4 years ago
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    Stereotactic Biopsy

    Procedure or Surgery

    January 22, 2013: Heather went back to Albany for her biopsy and was diagnosed with Anaplastic Astrocytoma.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    February 2013: She started treatment with 135MG of Temodar taken daily at home, and radiation Mon-Fri for 6 weeks. The first week was absolutely miserable until we were able to adjust the anti-nausea meds accordingly. Since, then the treatments have been smooth. She finishes in a few days.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    about 4 years ago
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    Fatigue (tiredness)

    Side Effects

    The radiation fatigue has become constant after 5 weeks. She can do little more than move from bed to couch to bathroom. She also started running a fever last night, but it is responding to Tylenol. We're having tests to check her white count today or tomorrow.

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  5. 5
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    about 4 years ago
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    Back in the Hospital

    Oh No

    She went back in today with a 103.4 fever, severe headache, tremors, confusion, and other symptoms. No obvious infections are presenting, but docs are running all sorts of tests. Possibly onset of toxic shock from chemo, but they don't know yet.

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  6. 6
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    almost 4 years ago
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    Cancer is shrinking

    Celebration

    Have not posted in a while, but wanted to share some positive news: The 6 weeks of radiation seems to have paid off - the worst part of my wife's tumor has shrunk tremendously and the docs are very pleased with her progress! She is in the 3rd month of a 6 month chemo cycle now (5 days on oral Temodar/280MG, 23 days off), and is doing great. No seizures in a long time. She's up & around, making dinner, doing laundry, and trying to be as active as she can. Her hair is starting to grow back too!

    2 Comments
  7. 7
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    about 3 years ago
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    Cancer has spread/Metastasized

    Oh No

    Found out my wife's tumor is spreading microscopic tentacles through her brain. She's back on Temodar, along with Avastin. Swelling in her cerebellum is causing extreme nausea and dizziness 24/7.

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  8. 8
    • jazzhead68
    • Experience with High-Grade Astrocyt...
    about 3 years ago
    jazzhead68's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Temodar is easy to take, but really wipes her out.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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