Joeysmommy's Journey with Osteoblastic, High-Grade Osteosarcoma

Lost Loved One: Bone Cancer > Osteosarcoma (Also called Osteogenic Sarcoma) > High-Grade > Osteoblastic

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: over 8 years ago, Male

  1. 1
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    about 4 years ago
    Joeysmommy's Avatar

    Lost loved one

    Loss

    My 22 year old son was diagnosed with High Grade Osteoblastic Osteosarcoma in February of 2009. He bravely battled this disease for a year and a half, enduring several surgeries including an above the knee amputation to possibly save his life. After the amputation, this horribly aggressive cancer had already spread to his lungs. Chemo therapy had proved futile and the clinical trial drug he was approved to receive had been delayed due to some stupid side effects that had nothing to do with that particular drug. Nonetheless, we ended up losing him while waiting for them to release the drug which was supposedly going to help him. He fought courageously to the very end, telling his oncologist to continue administering the antibiotic he was on for the pneumonia in his right lung while he was under morphine. On June 11, 2010 he finally lost his battle and went home peacefully, leaving his family with our hearts completely shattered.

    0 Comments
  2. 2
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    about 4 years ago
    Joeysmommy's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This was the beginning of the many surgeries my son would endure.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    about 4 years ago
    Joeysmommy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    His first dose of chemo was a combination of two kinds of chemotherapy medication. It was on an out-patient basis and he sat in that room for 12 hours getting an IV. He became gray in color and shortly after became violently sick. He threw up all night and had to repeat the whole process again the following day for the next three days. He was so nauseous and sick for weeks to come. He lost mass amounts of weight and his hair soon followed. His appetite was gone and his taste buds made everything taste like metal and completely off. He was absolutely miserable.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    about 4 years ago
    Joeysmommy's Avatar

    Surgery

    Procedure or Surgery

    On June 30, 2010 he had a full knee, tibia and fibula transplant. This was his 22nd birthday. It was an eight hour surgery and his recovery in the hospital was approximately two weeks. He wore a cast up to his thigh for six weeks and finally a brace that aided him in walking. He was able to walk normally again for six months, until the cancer came back again.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    about 4 years ago
    Joeysmommy's Avatar

    Surgery

    Procedure or Surgery

    When the cancer came back, they were BB sized tumors in his knee. They were removed in an out-patient procedure and he was able to go home the same day. Shortly after this surgery he slowly began to limp again, and within a month his knee had swollen and the tumor was back in full force. This was when the ultimate surgery would take place. On January 11, 2010 he had this procedure done.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  6. 6
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    about 4 years ago
    Joeysmommy's Avatar

    Surgery

    Procedure or Surgery

    On March 6th, 2010, my son underwent the surgery he had dreaded since he first heard the word "cancer". He was amputated above the knee. In the recovery room, he was quietly sobbing when we walked in, breaking my heart into a million pieces. He stayed in the hospital for almost two weeks in intense pain for the first four of those days. When he was released, it was back on the crutches, but he was now looking forward to the top of the line prosthetic leg he was going to be getting. He was actually excited about this thing.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  7. 7
    • Joeysmommy
    • Experience with Osteoblastic, High-...
    about 4 years ago
    Joeysmommy's Avatar

    They were going to place my son on a drug that was explained to us as follows. It was like a smart bomb that would only target the cancer cells but leave the healthy cells alone. This drug would kill the cancer more thoroughly and keep him healthier becau

    Clinical Trial

    He went through all sorts of tests to make sure he qualified for this drug. He had to sign pages and pages of documents and waivers. He finally received the news that he was approved and would be on the waiting list once the drug became available. He was scheduled to start the trial drug when we received a call that it was temporarily being pulled because there were some minor side effects from a drug that was from the same "family" but not the actual drug that he was supposed to be getting. This was a harsh setback as he was slowly beginning to deteriorate as fluid was starting to build up in his lungs. The stipulation to qualify for this trial was that the patient had to be "healthy" enough to be able to walk into the chemo room. All hopes were dashed when they told us it would be several weeks before they could try to use this trial drug.

    0 Comments