LAllen's Journey with Uterine Leiomyosarcoma

Patient: Endometrial (Uterine) Cancer > Uterine Leiomyosarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Female, Age: 49, Stage IV

  1. 1
    • LAllen
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
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    Cancer has spread/Metastasized

    Oh No

    After being told I had Uterine Cancer by my Urologist I was referred to an Oncologist who immediately gave me a CT and showed me the results indicating my stage was IVB, my response was can we cut it out he said no, I asked can we cure it he said I can't, I asked can we treat it he said I can try to buy you time if that's what you'd like to do but it is aggressive and I can make not promises (leiomyosarcoma). He said it's in your pelvic area, bladder, abdomen, and lung. Oh no!

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  2. 2
    • LAllen
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    LAllen's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    After being diagnosed I was informed that there would be lots of chemotherapy and the best was to draw blood and give infusions would be to insert a portacath. I agreed to the procedure which went smoothly and it's use is preferred over constant sticking in my veins. After two years I experienced complications. The port refused to draw blood and infuse chemo at a normal pace it was cleaned but failed. I was hospitalized for a staff infection following a cleaning, upon arrival in the ER room when trying to have any usage of the port my heart rate dropped from 90 to 30 this happened on several occasions so the port was removed and replaced. The new one is working fine.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  3. 3
    • LAllen
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
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    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • LAllen
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    LAllen's Avatar

    Side Effects

    This person has yet to add any details about this experience.

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  5. 5
    • LAllen
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    LAllen's Avatar

    Loss

    This person has yet to add any details about this experience.

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