pmooty's Journey with Adenocarcinoma, Colorectal Cancer

Survivor: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 54, Stage IIIB

  1. 1
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    about 4 years ago
    pmooty's Avatar

    Diagnosed before 50

    Oh No

    I had some small amounts of blood in bowel movements in December 2011 after constipation following a hysterectomy. The blood was slight but did continue. I had a GI appointment in May but rescheduled until July and missed that one as well. I finally saw the doc in August of 2012 and he did not want to wait the three months until I was 50 to do a colonoscopy. He felt like it might be a prolapsed hemorrhoid, but then I had the frightening news that it was indeed a cancerous lesion. My mother died at 49 from stomach cancer, and of course that made my fear escalate. I had great friend, family and church support from the beginning and that made all the difference to get me through the scariest times, which for me was initial diagnosis, waiting on all the appointments, surgery and tests. Thank God my CT scan looked good before surgery but it gave me false confidence. I did indeed have 5 positive lymph nodes from the 15 that were taken, requiring me to have chemo. I knew people who had gone through it and I knew I could get through it. Now that I've talked to others who have had recurrence after being told they needed no chemo, I feel more "covered". I had a clear CT and PET scan after surgery. One more chemo to go and then surveillance will start. Praise God for holding me up through it all and I pray to be a survivor story on here!

    1 Comment
  2. 2
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    about 4 years ago
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    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    I had a partial colectomy with 8 inches of colon removed. My surgery went well, and I did not require a colostomy. I was in the hospital four nights.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    about 4 years ago
    pmooty's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was sick the first two treatments, but they added Amend and I had relatively no more nausea. I was on Oxaliplatin but discontinued after treatment 5 due to bad reaction. I continue on 5FU

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    about 4 years ago
    pmooty's Avatar

    Allergic reaction

    Side Effects

    During treatment 5 of Oxaliplatin and 5FU I had a bad reaction to the Oxali. I had sneezing, coughing, chest tightness, high blood pressure, skin splotches and felt very. very ill. Luckily it was in the clinic and all nurses surrounded me. They gave me Benadryl and it all calmed down. Started me on a reduced dose but had some symptoms again. Doctor came in and told me we would discontinued that drug. I was somewhat upset because I wanted to make sure we were fighting with everything we have, but he assured me the my risk would only increase about 6% and it wasn't worth "killing" me to get me well. They did offer to try again but all suggestions were to stay off the drug. I continue on 5FU. One more treatment to go!

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  5. 5
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    about 4 years ago
    pmooty's Avatar

    Fatigue (tiredness)

    Side Effects

    I am currently wearing a pump, enduring treatment #11. Throughout this journey I have had fatigue, especially the first two rounds. I honestly did not know how I would complete 12 treatments. I explained to everyone that it didn't matter how many hours I slept, I still woke up feeling unrested and "icky". At treatment 5 I had a reaction to the Oxaliplatin and they discontinued. Since that time the fatigue has been contained to the third day after initial 5FU push and my APN friend explained that it is because that is when pre-meds are wearing off. I am a teacher and am off Thursday-Friday with the pump, DC pump on Saturday, sleep all day Sunday, off on Monday while still shaky. I feel fortunate to have had a lot of sick days saved up.

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  6. 6
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    about 4 years ago
    pmooty's Avatar

    Finished treatment

    Celebration

    Yesterday I underwent chemo #12, last treatment. Everyone in the clinic, even clerical staff, made mention of this milestone, gave me hugs, a certificate and I rang the bell in the chemo suite and everyone cheered. I cried when I got to the car and can't believe this chapter is over. Praise God, and I added a joyful post to my blog, which I will continue, hopefully posting notes of wellness and faith.

    0 Comments
  7. 7
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    over 3 years ago
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    Birthday

    Celebration

    Celebrated my 51st birthday! Cancer-free PET scan in July, tumor markers back to normal in October. Much different celebration than last year's when I was in the chemo chair. Hope and prayers for everyone going through this!

    3 Comments
  8. 8
    • pmooty
    • Experience with Adenocarcinoma, Colorec...
    over 3 years ago
    pmooty's Avatar

    port removal

    Procedure or Surgery

    Port removed 8 months after chemo finished and after CEA had returned to almost normal (3.6). Wanted to get it in before January and high deductible starts over, doctor agreed. Had it done on New Year's Eve. Happy and healthy 2014!

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    3 Comments