psue's Journey with Adenocarcinoma, Colorectal Cancer

Patient: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 46, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IV

  1. 1
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Tumor on Liver

    Procedure or Surgery

    I had a Liver resection for tumor unknown status one week prior to the colon surgery. The liver was a secondary site. Both surgeries in 2 weeks, required a long recovery time.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Benign Tumor was really Cancer (what?)

    Oh No

    I went in for a liver resection following the finding of a "Giant Hemangioma" when waking up it turned out to be Cancer and was a Secondary site.

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  3. 3
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    This was my primary site. I had this surgery 7 days after the Liver surgery, I was in the hospital the entire time.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    5-fluorouracil (5-FU)/oxaliplatin is the type of chemotherapy I receive.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  5. 5
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Nausea/Vomiting

    Side Effects

    I had terrible nausea for the first two chemo sessions. By the third they have worked out the kinks.

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  6. 6
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Genetic link?

    Oh No

    I have begun genetic counseling for probable Lynch Syndrome. Jeez, only 3% of the population carries this gene. Lucky me.

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  7. 7
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  8. 8
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Folfox not working. starting new chemo today.

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have started a new therapy. Erbitux and irinotecan. The erbitux causes quite a acne like rash on my face (ugh) and torso. This is an every Tuesday event. The other is every other week. I have been tired like never before. I do feel it might be an easier go that folfox. We will just have to wait and see.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  10. 10
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    I have started erbitux (immunotherapy) weekly and irinotican (chemotherapy) everyother. I hate the pimply rash and am very fatigued but I don't miss the 5FU (FU being the key word) it didn't work for me and I hated the fear of long term neropathy.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  11. 11
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    over 4 years ago
    psue's Avatar

    Last chemo today 7/5/13. Wahoooo..

    Celebration

    Even if it doesn't last I get a few weeks off chemo and on to targeted radiation. I have hope again. Not gonna pretend that I'm going to be cured. But I am going to have a great couple of weeks.

    1 Comment
  12. 12
    • psue
    • Experience with Adenocarcinoma, Colorecta...
    about 4 years ago
    psue's Avatar

    External radiation

    Radiation

    I went in to radiation expecting minimal if any side effects and am sorry to say I was wrong. So far I have been nauseated the same day and the following day. I'm also fatigued. I have slept the night of treatment and all day the following day. :(

    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments