Thess3_13's Journey:

Family/Friend: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Diagnosed: about 4 years ago, Male, Age: 71

  1. 1
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Misdiagnosed

    Oh No

    Oct 5 2012. Dad had symptoms of a strange smell of gas that stayed with him for over 24 hours. Went to the ER while on vacation and misdiagnosed as Acid Reflux

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  2. 2
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Surgery

    Procedure or Surgery

    Biopsy in Dec 2012 confirming Anaplastic Astrocytoma

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Whole Brain Radiation

    Radiation

    Dad was burned severely around his head and ears from WBR. He has very fair skin.

    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Temodar started affecting Dad's platelets and WBC after about 20 days during radiation

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Medicine for low white blood cell count

    Drug or Chemo Therapy

    Mom had to learn to administer a shot to Dad's stomach to raise his WBC count due to Temodar

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  6. 6
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Platelet Infusion

    Drug or Chemo Therapy

    Needed a platelet infusion at the hospital due to very low counts with Temodar

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  7. 7
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Avastin or Novocure Device

    Decision Point

    Since Dad had such bad side effects on his blood counts from Temodar we decided to go with Novocure Device as there is little to no side effects

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  8. 8
    • Thess3_13
    • Experience with High-Grade Astrocyto...
    almost 4 years ago
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    Novocure Device

    Other Care

    This is a TTField Cap to be worn over 18 hours per day that requires being either plugged in to an outlet or to carry a battery pack.

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