Thess3_13's Journey:
- 1 Oh No Icon Oh No
- 2 Procedure or Surgery Icon Procedure or Surgery
- 3 Radiation Icon Radiation
- 4 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 5 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 6 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 7 Decision Point Icon Decision Point
- 8 Other Care Icon Other Care
Family/Friend: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)
Patient Info: Diagnosed: almost 5 years ago, Male, Age: 71
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoMisdiagnosed
Oh No
Oct 5 2012. Dad had symptoms of a strange smell of gas that stayed with him for over 24 hours. Went to the ER while on vacation and misdiagnosed as Acid Reflux
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoSurgery
Procedure or Surgery
Biopsy in Dec 2012 confirming Anaplastic Astrocytoma
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoWhole Brain Radiation
Radiation
Dad was burned severely around his head and ears from WBR. He has very fair skin.
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoChemotherapy
Drug or Chemo Therapy
Temodar started affecting Dad's platelets and WBC after about 20 days during radiation
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoMedicine for low white blood cell count
Drug or Chemo Therapy
Mom had to learn to administer a shot to Dad's stomach to raise his WBC count due to Temodar
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoPlatelet Infusion
Drug or Chemo Therapy
Needed a platelet infusion at the hospital due to very low counts with Temodar
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoAvastin or Novocure Device
Decision Point
Since Dad had such bad side effects on his blood counts from Temodar we decided to go with Novocure Device as there is little to no side effects
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Thess3_13
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Experience with
High-Grade Astrocyto...
over 4 years agoNovocure Device
Other Care
This is a TTField Cap to be worn over 18 hours per day that requires being either plugged in to an outlet or to carry a battery pack.