medulomom's Journey with Medulloblastoma

Family/Friend: Brain and Spinal Cord Tumors in Adults > Medulloblastoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 10 years ago, Male, Age: 31

  1. 1
    almost 10 years ago
    medulomom's Avatar

    Diagnosed

    Oh No

    my son was diagnosed with a medulloblastoma and had surgery to remove it sept 21 2011 he was 20 and turned 21 in rehab.

    0 Comments
  2. 2
    almost 10 years ago
    medulomom's Avatar

    Procedure or Surgery

    a few hours after the 8 hour surgery my son develloped Posterior Fossa Syndrome also knows as Cerebral Mutism... this was a shock as no one had told us this could even happen and it has made dealing with this cancer SO much worse. He just finished proton radiation and chemo and can't even go and have some fun to forget this ordeal for a few hours.. instead he is stuck in his body that cant move as he wants to. NO WALKING NO TALKING NO NOTHING....

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    almost 10 years ago
    medulomom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    my son had 6 rounds of vincristine side effects were nausea, loss of hair loss of weight

    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 4
    almost 10 years ago
    medulomom's Avatar

    proton

    Radiation

    he lost his hair skin was burned to a point were it cracked and was very painfull, he is now telling me he lost some vision in one eye and hearing in one ear... god knows what else

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. 5
    almost 10 years ago
    medulomom's Avatar

    Nausea/Vomiting

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    almost 10 years ago
    medulomom's Avatar

    Cough

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments