sunmoonie's Journey:

Survivor: Ovarian and Fallopian Tube Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 19 years ago, Female, Age: 66, Stage IIB

  1. 1
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    Ovarian and Endometrial Cancer Diagnosis

    Oh No

    Shock, disbelief that I would have cancer

    0 Comments
  2. 2
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    Debulking surgery

    Procedure or Surgery

    Total hysterectomy. First surgery ever and first time in the hospital.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had hard to find and small veins. My first chemo took 6 sticks. I had a port placed soon after.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    Nausea/Vomiting

    Side Effects

    Nausea, bone pain, chemo brain, hair loss, weakness, depression, e coli infection which required hospitalization

    0 Comments
  5. 5
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    After treatment, I had to decide whether to have a second look surgery

    Decision Point

    I had a laparoscopic second look surgery which was clear. An IP port was placed for possible future chemo. Was never needed and never worked. I still have it

    0 Comments
  6. 6
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    My mind/Sense of Humor

    Loss

    I felt a sense that my body betrayed me. I was distrustful that I would stay well. I had to learn to trust myself and my body again. It was a long process

    0 Comments
  7. 7
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    Loss of over 70 friends in the ovarian cancer community

    Loss

    After my diagnosis, I was meeting women from all over the country at ovarian cancer retreats, conferences, etc. In the 16 years since my own diagnosis, I have lost many many friends in that community.

    0 Comments
  8. 8
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    Remission

    Celebration

    I was happy to achieve remission, but I felt like I was waiting for the other shoe to drop. I worried and was fearful of a recurrence. I didn't think I would survive.

    0 Comments
  9. 9
    • sunmoonie
    • Experience with Ovarian and Fallopia...
    almost 3 years ago
    sunmoonie's Avatar

    Started an ovarian cancer advocacy organization in Southern California

    Celebration

    In 2002, I started an ovarian cancer advocacy organization in Southern California. (www.oasisofsocal.com). We do education and awareness of ovarian cancer and also support for local women who are dealing with it. Last year, I changed careers and became a cancer survivorship coach with Womens' Cancer Connection (www.womenscancerconnection.com). Helping other women deal with gynecologic and breast cancers through our organization as well as coaching is very rewarding.

    2 Comments