PPaseka's Journey with Squamous Cell Carcinomas, Vulvar Cancer

Caregiver: Vulvar Cancer > Squamous Cell Carcinomas

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 50

  1. 1
    • PPaseka
    • Experience with Squamous Cell Carcinom...
    over 5 years ago
    PPaseka's Avatar

    Partial Vulvectomy w/lymph nodes removed in both groins and illiac region

    Procedure or Surgery

    We were diagnosed with metsasized squamous cell carcinoma, primary site unknown, after a groin biopsy of lymph node. With the help of a friend, we were able to get into IU Simon Gyn/Onc clinic without a referal. After being examined, they thought it was not female related but thet ordered more pathology of the original biopsy speciman and also order a PET CT. After the inital exam, the resident mentioned Bartholins Gland cancer but the initially ruled it out because of her age and the fact that they both could not feel it. We done the PET CT on Oct. 20 and got the results and also the pathology back on the 21st. Bartholins Gland cancer of the right Bartholin Gland. We had a partial vulvectomy on Nov. 8th at IU Medical in Indy. Surgery went well. They were able to remove the tumor in the Bartholins without having to do a skin graft. We were release on the 11th. We ended back at IU on Dec. 1 with cellulitis. We spent two days with IV penicillin. We are going to start chmeo on the 27th. They will be using cysplatin as a radiosensitizer along with radiation for five days a week for six weeks. The pathology on the lymph nodes showed that of the 28 removed, 13 were invloled with cancer.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • PPaseka
    • Experience with Squamous Cell Carcinom...
    over 5 years ago
    PPaseka's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • PPaseka
    • Experience with Squamous Cell Carcinom...
    over 5 years ago
    PPaseka's Avatar

    Oh No

    I guess this is an "oh no". Yesterday, my wife had a followup visit with our rad onc. It had been six weeks since radiation had ended and wanted to check and make sure everything had healed properly. While giving her a pelvic exam, he kept saying he was feeling a mass that shouldn't be "there". He started to order a quick CT scan to verify it was only her bladder and not a new tumor. We were discussing what it could be and he stated that the mass was where her uterus "was". We didn't pick up on it the first time he said "was" but we did the third time. He had forgotten that she still had her uterus. Big relief when he apologized for the mistake. Talk about an emotional roller coaster. From terrified to relieved real quick!!

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  4. 4
    • PPaseka
    • Experience with Squamous Cell Carcinom...
    about 5 years ago
    PPaseka's Avatar

    External radiation

    Radiation

    My wife went through 28 IMRT 6x treatments. Tolerated everything well.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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