Grandpa_Ray's Journey with Multiple Myeloma

Patient: Multiple Myeloma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 6 years ago, Male, Age: 65

  1. 1
    almost 6 years ago
    Grandpa_Ray's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    almost 6 years ago
    Grandpa_Ray's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    In the learning stage of understanding what is being prescribed and the effects and potential consequences. Looking at other resources (conventional/complimentary) to my current treatment.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. 3
    almost 6 years ago
    Grandpa_Ray's Avatar

    Celebration

    Talked with a doctor from the Oregon Health Sciences University last month. He gave me a totally different diagnosis and prognosis of my cancer. He said I was healthy enough for a bone marrow transplant but he wanted to hold off because my wife is in Hospice and he didn't want two people in the same household needing full-time care and because I have other options to try before hand. He's changed my chemo to Bortezomib which I will receive the first dose on the 6th. He also said the 1-2 year prognosis is not justified and that he felt confident we could battle this for many, many years to come.

    0 Comments
  4. 4
    almost 6 years ago
    Grandpa_Ray's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started first round of Velcade (Bortezomid) yesterday after 3 rounds of Melphalan last quarter. Fortunately, the Dexamethosone is 1/4th the dosage. Stay tuned for side effects.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. 5
    over 5 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    After 12 doses of Melphalan and 4 doses of Velcade, my Lambda Light Chains have been reduced from 250 to 170 (normal is <26!). That is a 32% reduction in my Amyloid protein output. That is good news! I’m also learning about nutrition and supplements. I will be giving my pharmacist the list of supplements I intend to take for his approval. Anyone have any good/bad experiences with nutrition and supplements?

    1 Comment
  6. 6
    over 5 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    Latest test results are that my bad proteins are in the normal range (17). This will allow me to slide my next chemo round so I can have an unrelated surgery within the next 3-4 weeks. Then I get to see how long the numbers stay good.

    1 Comment
  7. 7
    over 5 years ago
    Grandpa_Ray's Avatar

    Cancer is shrinking

    Celebration

    Test results continue to show we are beating my cancer's butt. Latest test number is 13.8. Well below the normal "high" of 26. Fortunately side effects, although numerous, are only an "inconvenience".

    4 Comments
  8. 8
    about 5 years ago
    Grandpa_Ray's Avatar

    Put on Maintenance Mode

    Celebration

    My numbers have been in the "normal" range now for several months, which means my cancer has shrunk. Since I am experiencing some neuropathy in my feet, the doctor decided to put me on maintenance mode to hopefully reduce the side effects. So now I get chemo only every other week. Also, due to a recent clinical trial, my Velcade is now administered as a small shot into my abdominal fat (like an insulin shot). It's all good! This is my new "normal" for probably the rest of my life.

    1 Comment