stripe34's Journey with Angioimmunoblastic T-Cell Lymphoma

Patient: Non-Hodgkin Lymphoma (NHL) > T-Cell Lymphoma > Peripheral T-Cell Lymphoma > Angioimmunoblastic T-Cell Lymphoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 52, Stage IV

  1. 1
    • stripe34
    • Experience with Angioimmunoblastic T-...
    almost 4 years ago
    stripe34's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. 2
    • stripe34
    • Experience with Angioimmunoblastic T-...
    almost 4 years ago
    stripe34's Avatar

    Long-term catheter

    Procedure or Surgery

    Removal was far worse than implant! Triple lumen Hickman.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • stripe34
    • Experience with Angioimmunoblastic T-...
    almost 4 years ago
    stripe34's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    RCHOP and CHOP initial therapy. Not too bad, but didn't cure my cancer

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • stripe34
    • Experience with Angioimmunoblastic T-...
    almost 4 years ago
    stripe34's Avatar

    Sorafenib (Nexavar)

    Clinical Trial

    Side effect of blistered/burning hands and feet. did not completely cure my cancer.

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  5. 5
    • stripe34
    • Experience with Angioimmunoblastic T-...
    almost 4 years ago
    stripe34's Avatar

    Allergic reaction

    Side Effects

    Dystonia - Central Nervous System reaction to Compazine

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  6. 6
    • stripe34
    • Experience with Angioimmunoblastic T-...
    almost 2 years ago
    stripe34's Avatar

    cGvHD - Chronic Graft Vs. Host Disease

    Other Care

    Managed with prednisone, tacrolimus, and prophylactics (antibacterial, antiviral, antifungal), plus supportive (magnesium, Vit D, Calcium citrate) since GvHD diagnosed May 2013

    0 Comments
  7. 7
    • stripe34
    • Experience with Angioimmunoblastic T-...
    almost 2 years ago
    stripe34's Avatar

    Psychosocial

    Other Care

    Psychologist and potential psychiatrist visits. Experiencing anxiety about cancer relapse, chronic GvHD symptoms/management/future, medical tests and procedures, and pain management

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