JazzDev's Journey with Sarcoma, Bladder Cancer

Spouse/Partner: Bladder Cancer > Sarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 58, Stage III

  1. 1
    • JazzDev
    • Experience with Sarcoma, Bladder Cancer
    almost 4 years ago
    JazzDev's Avatar

    Pain more test, right around the holidays.

    Oh No

    Lots of hurry up and wait. Money quickly became an issue, when do we tell the kids and do we sell the house.

    0 Comments
  2. 2
    • JazzDev
    • Experience with Sarcoma, Bladder Cancer
    almost 4 years ago
    JazzDev's Avatar

    Had a scope to see into the bladder and found the tumor. Found it is in the walls of the Bladder. Did not need to wait for the biopsy, no misunderstanding the tumor is cancer.

    Procedure or Surgery

    The Dr. was very clear on what to expect over the need few days. Meet in his office when my husband is awake and can clearly understand the news. Make a game plan

    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • JazzDev
    • Experience with Sarcoma, Bladder Cancer
    almost 4 years ago
    JazzDev's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My husband was never offered a port or a PICC Line. To take the strain off his veins. The chemo could not be finished as hoped. The Chemo has no effect on the tumor

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • JazzDev
    • Experience with Sarcoma, Bladder Cancer
    almost 4 years ago
    JazzDev's Avatar

    Fatigue (tiredness)

    Side Effects

    The time it takes to get a simple task down is hard for both of use. I have to have the medical supplies

    0 Comments
  5. 5
    • JazzDev
    • Experience with Sarcoma, Bladder Cancer
    almost 4 years ago
    JazzDev's Avatar

    Bladder Removal

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 6
    • JazzDev
    • Experience with Sarcoma, Bladder Cancer
    almost 4 years ago
    JazzDev's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This time we had a PORT installed. The first two days of Chemo have been horrid! How this family is going to be able to stick together with 14 more to come, will be a miracle.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment