Gypsy's Journey with Head & Neck/Throat Cancer

Spouse/Partner: Head & Neck/Throat Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 6 years ago, Male, Age: 71

  1. 1
    • Gypsy
    • Experience with Head & Neck/Throat Cancer
    over 5 years ago
    Gypsy's Avatar

    Cancer is back/Recurred

    Oh No

    Very stressed to max...making rounds, long trips, exhausted. 33 radiation treaments and told July he was cured. So appy and relieved. We bought a small Rv camper...to travel and go home from Florida to Texas...Texas is home to see daughter, brother, many friends. We went home in October. A neurosurgeon had set up neck surgery for bone spur on his spine...November. Hubby having bad headaches and pain. We did pre-ops ready for this surgery and elbow surgery to follow for nerve damage, his arm weak...to correct this. We thought we'd be all done by January. To travel...had plans. He bought 2 wheel used Harley to trike it n enjoy that world...again. He is a Navy Viet Nam Vet AMPUTEE also, above knee. We had appt with throat doctor to look down his throat, check again...he had seen NOTHING in September! Then that look on his face and ordered another biopsy...told tumor...cancer...the neck surgery halted and now thrown into scans, full body scans...going to MD ANDERSON, don't know results till Wed. and have appt Dec 27 at Moffitt, Tampa...oveer 2 hr drive heavy traffic and I, 67 don't drive much...so this is a problem too! Seeing another surgeon, another opinion. Tried hard to get into Mayo Clinic, Jacksonville...they said Jan 26 and that is too long with a tumor in his throat that could be growing and he could lose his voice box...OMG!!! 1 legged, lose use of arm, diabetic, and lose voice too. It is TOOOOOO MUCH TO BEAR. He gets treatment at VA for depression common in War Vetsd and amputees and now ALL THIS TOO. He is ALL I HAVE. No family here and no close friends, is a hard place to make GOOD FRIENDS. We feel so alone, so scared. Just moved into small rent house. Don't know neighbors either. People here stay to themselves, are not friendy like in Texas. Gas is costing us a LOT! So now had to put up RV camper for sale and will lose at least $1000 plus to sell it so we can afford extra costs to fight his cancer battle. Is breaking us fast. I am diabetic, stress driving blood sugar very high and I had diabetic shock, rushed to hospital awhile back. My health not good but I am all he has and to depend on...I try to be brave, but I break down crying...a lot. Can't focus. My mind drifts and holidays makes all this so much WORSE. 25th tough day anyway...my stepdad died of cancer on that day! Miss him and every Dec 25th relive those events! My young nephew died 6 yrs ago on Christmas morning...2 family deaths and a good friend died on Dec 23...heart attack. Holidays feel just sad for us and we are ALONE HERE during holidays anyway. We need driving help and can't find ANYONE. I've spent weeks making calls, feels like doors slammed in my face...no hope. Gas money help and can't find this either and local support...I am a TOTAL WRECK! So scared to be alone as he goes thru surgery...we think, as this is last option and he can be in hospital days and 119 mi from our home. I can't afford motel room too and don't want to be all alone in a motel room. Ihave been rape and robbery victim...beaen and stabbed in those attacks and a fear of being in strange towns and motels by myself and walking busy city streets by myself. Seems elderly in Florida always getting attacked, sometimes killed. WHAT TO DO? i CANNOT live or go on without my huband, he is my partner and only friend in Florida. Someone hear me...please respond asap..I can't slee or eat, losing weight faster than normal. I shake and cry all the time now. PLEASE HELP.

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  2. 2
    • Gypsy
    • Experience with Head & Neck/Throat Cancer
    over 5 years ago
    Gypsy's Avatar

    External radiation

    Radiation

    5 days a week at Space Coast Cancer Center Titusville...his neck turned black, he lost taste buds,. his throat so swollen he couldn't swallow, gagged a lot...went from 175 lbs to 158 lbs. He was so miserable. I felt so helpless and while waiting in waiting room heard stories of other patients that died that week and I got SO SCARED. He had 33 treatments and he was sooo sick and his throat is still sore now. It was so complicated, hard on us both and it didn't work. OMG!!!!!!

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • Gypsy
    • Experience with Head & Neck/Throat Cancer
    over 5 years ago
    Gypsy's Avatar

    Allergic reaction

    Side Effects

    He had vomitting, shaking, huge weight loss fast, which causes his prosthetic leg to come off his now smaller stump...I worry he can fall and get badly hurt. He had bad headaches, always very tired, slept all the time. Smell of food made him feel sicker. He looked so pale, his eyes red with pain and worry. He got so weak. It was horrible!!!!

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  4. 4
    • Gypsy
    • Experience with Head & Neck/Throat Cancer
    over 5 years ago
    Gypsy's Avatar

    Decision Point

    Not sure what to do...next. Scared surgey might not be an option. Then what? he tumor is small, smaller than end of thumbnail and stage 2 and others say this is curable...I am dazed and confused. Please help me...I feel I am losing my mind thru all this and he just sits and stares sadly and says he doesn't want to die and leave me behind alone.

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  5. 5
    • Gypsy
    • Experience with Head & Neck/Throat Cancer
    over 5 years ago
    Gypsy's Avatar

    My mind/Sense of Humor

    Loss

    I am not me any more and he is not himself. We lost our dreams, goals, ourjoy...our lives now is all about cancer, cancer, cancer, trips and appts and waiting on calls and news and results...we have NO REAL LIFE and will not have a christmas this year...we do not feel in mood at all. Plus getting broke from all this too. Feel in deep despair and disbelief. Will he died? OMG we are both terrified, cling to each other and shake hard at times. If he dies, I will have to sell out, pack up, and move...where by myself? Our govt takes a widow's SS check from her when her husband dies and she has half income to live on, but same prices to pay for everything in life...I've seen widows end up homeless. I am terrified. HE IS VERY VERY TERRIFIED. Married 18 yrs ups and downs, but nothing like this...he said losing his leg was hard, limited him so much, but even that not as scary as this cancer...we HATE CANCER!

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  6. 6
    • Gypsy
    • Experience with Head & Neck/Throat Cancer
    over 5 years ago
    Gypsy's Avatar

    Other

    Other Care

    No other so far but the radiation...what else can we do? Bought bags of herbal supplements, began green juicing and book on alkaline diet...says it kills cancer is very strict and long list of forbidden foods, difficult to follow, but does it WORK??? That is our hope...we need HOPE!!!!

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