bated_breath's Journey with Bladder Cancer

Patient: Bladder Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Male, Age: 47

  1. 1
    over 4 years ago
    bated_breath's Avatar

    Blood clot in urine

    Oh No

    While urinating, passed *something* other than urine. Upon examination, a small blood clot. Became nervous, told myself if it happens again tomorrow I will go to the ER. Well, it *did* happen again - but much worse (larger clot, cranberry-colored urine). Anxiety progressed quickly to panic. Called 911, took ambulance to the ER. CT scan showed 2cm mass in bladder. Was told to consult a urologist for cystoscopy procedure.

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  2. 2
    over 4 years ago
    bated_breath's Avatar

    Cystoscopy

    Procedure or Surgery

    Cystoscopy involves inserting a cystoscope (a flexible tube with a light source and camera) into the bladder via the XXX. OUCH. I was given a local anesthetic gel to reduce the pain of inserting the scope. Still, it was VERY uncomfortable. Not to mention the female technician *observing* the procedure. *AWK-WARD*! It was all over in about 10 minutes (which felt like an hour). I hesitantly asked the doctor if it was cancer. He sheepishly answered, "Yes". My whole body and mind went numb. I wanted to ask questions, have things explained to me; but I could not move or even *think* of words, nevermind *speak* them. He did the rest of the talking, telling me that bladder cancer is very common and very treatable. He wanted to schedule me for another cystoscopy/biopsy the next day. I agreed.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    over 4 years ago
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    Cystoscopy; Biopsy; Transurethral Resection of Bladder Tumor (TURBT)

    Procedure or Surgery

    I received General Anesthesia for this one - thank God. Basically it was the same cystoscopy as the day before, but tissue samples were taken for biopsy and my bladder wall was 'scraped' in an effort to remove the tumor. I woke up to find a THICK yellow catheter tube (felt like a fire hose!) attached to me. Very uncomfortable. Very unpleasant. Was monitored in the hospital for the next 3 days. Some social workers came to visit me; one specifically to help me apply for State benefits. After my urine cleared up a bit, I was told that I would be discharged soon. I went home and waited for 'the call' to hear how bad things were...

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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