DisneyGirl's Journey with Glioma

Patient: Brain and Spinal Cord Tumors in Adults > Glioma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Female, Age: 51

  1. 1
    almost 4 years ago
    DisneyGirl's Avatar

    Surgery

    Procedure or Surgery

    I had brain surgery in June 2010 to remove what appeared to be a cyst and turned out to be terminal brain cancer called Glioblastoma. The placement of my tumor left me without use of my right arm and leg. After a month of rehab regained use of arm and most of my leg. I still have limited use and feeling of my lower right leg and foot.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    almost 4 years ago
    DisneyGirl's Avatar

    Rehab

    Oh No

    After surgery I had to regain use of my right arm and leg. I was in rehab for a month. I had to learn how to walk all over again.

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  3. 3
    7 months ago
    DisneyGirl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was on Temador for a year along with Avastin 2 times a month for the first 2 years. For my third year I did Avastin 1 time a month and after my fourth year and still in 2016 am getting Avastin treatment once every three months.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    7 months ago
    DisneyGirl's Avatar

    High blood pressure (hypertension)

    Side Effects

    The Avastin raised my blood pressure but it is now under control with medication.

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  5. 5
    7 months ago
    DisneyGirl's Avatar

    Anniversary

    Celebration

    I just celebrated my 6 year cancer anniversary without any tumor growth on June 28, 2016! YEAH ME!!!!!!!!

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