hanginin99's Journey with Endocrine Tumor (NET)

Patient: Pancreatic Cancer > Endocrine Tumor (NET)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 64

  1. 1
    • hanginin99
    • Experience with Endocrine Tumor (NET)
    over 5 years ago
    hanginin99's Avatar


    Side Effects

    Some mornings I can wake up and before I eat anything I can go 2-3 times. Then after morning coffee and breakfast usually like 4-5 more. It is not life threatening but an inconvenience. I am so grateful to be alive. I was diagnosed with a nueroendocrine tumor on top of my pancreas. I had to have 45% of my pancreas removed, duodenum, be "replumbed" and had areas on my liver that had to be ablatted. I would really like to be able to talk to someone that has undergone a similar experience and would understand and be able to identify.