celticgirl68's Journey with Rare Cancers

Family/Friend: Rare Cancers

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 5

  1. 1
    about 4 years ago
    celticgirl68's Avatar

    Surgery

    Procedure or Surgery

    My granddaughter has to have laser surgery on her eyes before she has a round of chemo. Her eye Doctor performs the surgery than a couple of days later my granddaughter gets admitted into the hospital. That's when they start to prepare Lili for her chemo. The next morning is when they start the chemo.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  2. 2
    about 4 years ago
    celticgirl68's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    After they finish Lili's Chemotherapy, they move her from the operating room to the recovery room. They begin to give her morphine for the pain. When Lili starts to wake up she's in excruciating pain from the therapy. That's why they start with the morphine. Lili will sleep for a few hours, than my daughter, Lili's mom will start to clean her up, give Lili her cup and dim the lights because Lili's eye's are swollen after the therapy. So she'll have the lights off and the t.v on.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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