shakespearefan's Journey with APL (M3), which Usually Has Transloca...

Patient: Leukemia > Acute Myeloid Leukemia (AML) > APL (M3)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 54

  1. 1
    over 4 years ago
    shakespearefan's Avatar

    Excited to have APL???!!!

    Oh No

    When I was in the emergency room waiting for a bed on the leukemia floor, some of the medical professionals gave me the impression I should be happy I have APL because MD Anderson had a very successful treatment for it. I was mourning my leukemia, not rejoicing that it was APL. Strange difference in the point of view!

    0 Comments
  2. 2
    over 4 years ago
    shakespearefan's Avatar

    Surgery

    Procedure or Surgery

    Is a bone marrow biopsy surgery?? I had put off the bone marrow biopsy for more than a month because I was terrified of it. All but one have been with sedation so I don't worry about them at all. The one done without sedation was as an inpatient, and the person who did it was so amazingly skilled that I had no pain. If I could have her every time, I'd give up the sedation.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    over 4 years ago
    shakespearefan's Avatar

    Long-term catheter

    Procedure or Surgery

    The woman who originally inserted it was terrible. I was terrified, and she did nothing to calm my fear. She supplied inadequate topical pain medication, and she knew at the time that the line was too short. I had to have it replaced when the line migrated, but this time the woman who did it was amazing. She talked to me during the entire procedure and provided enough medication that I was comfortable. I am indeed a wuss when it comes to pain inflicted from a medical procedure, but do a good job and talk to me. Knowing what is being done and asking questions so I have to concentrate on the discussion really helps.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    over 4 years ago
    shakespearefan's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    ATRA and arsenic trioxide. The ATRA dries my skin and give me what I call "chemo lips." The skin dries so much it becomes the worst chapped lips ever. Also makes my already dry eyes so bad I have trouble reading a book. Thank heaven for my new Kendle Fire. The Arsenic Trioxide does bad things to my digestive system, so bad that one of the problems was scary. Hard to describe to my doctor, and can't describe it here. One or both cause thinning of hair and bad taste. I still don't enjoy chocolate.

    Easy to Do: Agree
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Disagree
    1 Comment