ljleonard93's Journey with Colorectal (Colon) Cancer

Patient: Colorectal (Colon) Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 4 years ago, Female, Age: 53, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage III

  1. 1
    almost 4 years ago
    ljleonard93's Avatar

    Finding out

    Oh No

    I had went to the ER because I thought I had the flu, doctors had me do a CT because of my pain...then they thought I had ditectilites (?spelling), but during surgery Dr found a tumor in my colon...big surprise for me when I found out. Also after surgery, tney had to do Rapid Response Treatment on me, because I stopped breathing due to the combination of Dilatid and Phenagren...another big surprise for me when I found out

    0 Comments
  2. 2
    almost 4 years ago
    ljleonard93's Avatar

    Power Port

    Procedure or Surgery

    my port went really good. They were able to do an IV for the antibiotic by using an angiocath, the nurse even numbed the area first so that I would not stress because of all the other times it was painful due to my veins blowing. Anyways, my total surgery lasted 25mins....I was awake, they gave me demarol and valum, I was conversing w/ the nurses on my left while the doctor did the surgery on the right. Didn't even know he was done til they told me that it was time to move to the other bed to go back. The only part that was uncomfortable, was when they had to put these 2 cold patch things on my legs, I forget why...but they felt like ice cubes. After the surgery it was fine, but I made the mistake of hugging someone on that side...and it brought tears to my eyes. It hurt a lot for 2 day, today is the 3rd day and pain is only around the entry now. It does still hurt if I try to push or pull on anything. But I can sleep on it now, and put weight on that arm too. 

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    almost 4 years ago
    ljleonard93's Avatar

    PET scan

    Procedure or Surgery

    Pet Scan went good...a total of about 1hr and 25min. Had to get a radioactive IV of about 3 mins...then I had to sit still and quiet for about 45mins to let it make its way thru my system. Then the scan took about 25mins for it to scan my whole body torso. They didn't use my port for the IV, and I told them that they would probably need to do angiocath because my veins will blow. But they actually used a number 24 yellow needle and was able to get the IV done. I could feel the meds going thru my body, felt warmth around heart and then could feel it washing over my face like a warmth. But none of it hurt.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  4. 4
    over 3 years ago
    ljleonard93's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had my first chemo treatment the last of April. First the Oxiliplatin for 4hrs then the 5FU on pump for 2 days. Until chemo I felt fine, weak still from surgery, but good. Then had the chemo, and I literally felt like I was dying! The brain freeze headache, the wretching, the diahreah...the feeling of death is all I could feel. I am terrified of doing another bout now. I went for a second opinion at CTCA, and was told the same thing - sentence of 3-5 yrs w/ chemo. Unbelievable! But I am a fighter, I am just not sure if I can handle the chemo, it makes me feel so bad that I do not want to feel I can not make it. How do ppl survive this? That is why I am looking to see if I can find anyone who has made it past 10yrs w/ what I was told I have. DId they change their diet, do herbs also, do chemo only, do natural only, did chemo and natural, stopped sugar, etc...I am going to survive, and will not let this beat me. I plan on killing it instead, but chemo...not sure. I have asked for a chemo sensitivity test just to see if chemo will even work on me...but have not heard back from the Dr about it. CTCA wants to change the pump to a pill for 7 days. I may have to do another set just til I figure out if I can handle it or what else I can do to live. I just do not understand how putting poison into your body helps you survive...thats why I need to talk to survivors of 10 or more years w/ stage 4 colon cancer that has metasiicised to live or other areas, to see what they did or are doing. Thanks for listening

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    over 3 years ago
    ljleonard93's Avatar

    No chemo

    Decision Point

    After doing one round of the chemo, I had such a bad reaction that even my Ongologist and his nurse said they have never seen anyone react like that in a long time. Had a chemo sensitivity test done to see if it would even work. So I have been doing everything naturally - diet, vitamins and supplements, herbs, Turmeric, Essiac Tea, Apricot Seeds, Pau'd Arco, and Vit C IVs. I was amazed at how better I had felt. So I had my colestomy bag reversed on July 29th. I had to be off all my supplements and herbs for 2 weeks before the surgery tho. And I was nervous, because I have always heard not to have any surgery if you were diagnoised w/ Cancer...because it causes it to spread. Well the surgery went great! I actually broke a record at the hospital, I was up and walking 2 hrs after the surgery, passed gas on the second day, passed some stool on the 3rd and was sent home on the 4th! We decided to have a CT scan done on Sept 3rd. And it came back that the cancer had spread to my peritoneal wall and a left Ovary had a mass on it. So I recommend, wait to have any surguries for as long as you can to not take the chance of it spreading. Now its time to get down to work again! I go to a new Doctor that specializes in Mistletoe injections. Europe has great success w/ getting rid of the cancers like Colon, Ovarian, Breast and Lung. The doctor I am going to go to, trained in Europe..so is familiar w/ this type of treatment. BelieveBig.org is founded by Ivelise Page who her cancer is gone due to the Mistletoe injections, she was diagnoised w/ Stage 4 Colon Cancer like me 5 yrs ago, and her cancer has been gone for the last 4 years. The site also has testimonies of others that their cancer is gone. I will keep you posted. All I know is that I will never give up...and I will not give in to this cancer!

    0 Comments