Patria's Journey with Leiomyosarcoma

Patient: Endometrial (Uterine) Cancer > Leiomyosarcoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Female, Age: 51, Stage IV

  1. 1
    • Patria
    • Experience with Leiomyosarcoma
    almost 4 years ago
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    Misdiagnosed

    Oh No

    Initially diagnosed with fibromyalgia

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  2. 2
    • Patria
    • Experience with Leiomyosarcoma
    almost 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    I was urged by the Radiology nurse to have the implant placed while under "twilight". This was a huge mistake!!! I could feel everything that they were doing and it was extremely painful. My body tensed up due to the extreme pain and because they had my neck turned to one side and strapped down from the forehead while they performed the implant, this caused me to have a severe muscle spasm in my neck and shoulder bade in my back. All this on the first day that I started chemo was a mistake. My first round of chemo was absolutely horrible. Please have your port implanted before starting chemo.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • Patria
    • Experience with Leiomyosarcoma
    almost 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    1st round of Chemo was horrible!!! Let me explain that his chemo cocktail required 24 hour infusion for 6 days and could only be administered while staying in the hospital.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Patria
    • Experience with Leiomyosarcoma
    almost 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    The cocktail that I received was MAID

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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