josieowens' Journey with Skin Cancer - Melanoma

Family/Friend: Skin Cancer - Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 14, Stage IIIA, BRAF mutation positive: Don't Know, c-kit positive: Don't Know

  1. 1
    • josieowens
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    josieowens' Avatar

    Simple removal surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. 2
    • josieowens
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    josieowens' Avatar

    Wide excision surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • josieowens
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    josieowens' Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  4. 4
    • josieowens
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    josieowens' Avatar

    Cancer has spread/Metastasized

    Oh No

    Positive cells in one of three removed lymph nodes

    0 Comments
  5. 5
    • josieowens
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    josieowens' Avatar

    Full lymph node dissection

    Procedure or Surgery

    Removed 29 lymph nodes from left arm pit. Lymph nodes ultimately were clear.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  6. 6
    • josieowens
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    josieowens' Avatar

    Interferon

    Drug or Chemo Therapy

    Simon (age 10) started interferon Monday. Days 1 and 2 were shaky with some fever, achy legs, irritability, and general YUCKiness. Added nausea on day 2. He was fine for about 2 hours after infusion, then it began slowly. Peaked around 5 hours. Short nap and then better. Day 3 was fabulous. Added Zofran for nausea. Fever no higher than 99.5. He acted like my sweet boy. Day 4 good too. Now we're 4 hours past treatment. Remaining hopeful!

    Easy to Do: Neutral/NA
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  7. 7
    • josieowens
    • Experience with Skin Cancer - Melanoma
    about 4 years ago
    josieowens' Avatar

    Interferon shot therapy

    Drug or Chemo Therapy

    Simon received the infusion treatment for 4 weeks, ending mid-June. He's now on Interferon sub-q shot therapy 3x/week. We are able to do it at home and that has been helpful. Our doctor allows us to numb his skin with a Emble (sp??) cream about 45 minutes before his shot. That helps, but it doesn't affect the medicine itself. Simon doesn't quite know how to explain the shot, but the best we can tell is that the medicine burns/stings when injected. With the infusions through his port, that wasn't an issue at all, but with the shot therapy it has taken some getting used to. The pain/discomfort seems to last only a minute or so. Side effects are minimal, compared to stories we've read and heard. If there are other children out there, there is hope. All the stuff we've read has been based more so on adults. The stories scared us, but Simon's experience has been pretty good. Side effects are intermittent. FEVER---He often gets a low-grade fever. Generally it subsides on its own. We do treat with Tylenol/Advil as appropriate. We tend to do the shots in the evenings, so he sleeps through most of that fever. ACHINESS---From time to time, Simon will complain of achy feet and legs. I will often rub/massage his feet and legs for a little while and that generally helps. Sometimes the achiness continues off an on for an hour or so, but it has not been debilitating. HYDRATION---Not a side-effect exactly, but something we have to worry more about. It seems on shot days, if we can keep Simon better hydrated, the side effects are not so bad. Generally, treatments have gone well. He doesn't like the shots AT ALL, but we have maintained open communication throughout this whole journey and he understands why he has to have the shots. Part of the good news is that Simon has been able to maintain all normal activities. This cancer and treatment haven't slowed him down much. During infusion treatments he wasn't able to swim and with golf he focused more on his short game instead of full swings. Once infusions ended, he started back with swim team and has had a fabulous golf season.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment