BobbyG's Journey:

Patient: Kidney Cancer > Renal Cell Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 4 years ago, Male, Age: 55, Stage IV

  1. 1
    • BobbyG
    • Experience with Renal Cell Carcinoma
    almost 4 years ago
    BobbyG's Avatar

    radical nephrectomy on right side

    Procedure or Surgery

    Ouch. It has been 3 and one half months since surgery and I am getting along well. Trying to stay active without overdoing.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • BobbyG
    • Experience with Renal Cell Carcinoma
    almost 4 years ago
    BobbyG's Avatar

    interleukin 2 High dose

    Drug or Chemo Therapy

    Holy Cow this stuff is brutal. Easily the sickest i have ever been in my life.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • BobbyG
    • Experience with Renal Cell Carcinoma
    almost 4 years ago
    BobbyG's Avatar

    ct scan

    Other Care

    CT's from pelvic to neck today. My midway scans for IL2 bio therapy. This should tell the tale for me in regards to the effectiveness of the IL2 therapy. I do not feel nervous or anxious about seeing the results, just ready. I suppose I have no expectations one way or another. I think this is a bit odd considering how I felt when being diagnosed 3 1/2 months ago. I have three planned consults in two states following my scans and then I will decide on how to move forward.

    0 Comments
  4. 4
    • BobbyG
    • Experience with Renal Cell Carcinoma
    almost 4 years ago
    BobbyG's Avatar

    IL2 not effective

    Oh No

    The treatment I had been undergoing , (until today) has shown to be ineffective against my Renal Carcinoma clear cell. Dam It!!! However, my cancer is about the same as before treatment started. I have gained one small nodule in my left lung. I already have a very small nodule in my right lung. I also have cancer in a limited number of lymph nodes. Time to try whats next.

    0 Comments
  5. 5
    • BobbyG
    • Experience with Renal Cell Carcinoma
    almost 4 years ago
    BobbyG's Avatar

    bronchoscopy

    Other Care

    Before being diagnosed with renal cell I had a chronic cough. The Dr's. I had seen all seemed to ignore or neglect to take this seriously. Finally, after two cycles of IL2 with my current ONC, (which were ineffective unfortunately). I have had a pullmanary lung specialist perform this procedure for me. Waiting for results and a possible end to this long term problem cough.

    0 Comments
  6. 6
    • BobbyG
    • Experience with Renal Cell Carcinoma
    over 3 years ago
    BobbyG's Avatar

    Other

    Drug Therapy or Medication

    Started new treatment drug today, Votrient. My 2 cycles of Interleukin 2 were completely ineffective : ( I have new optimism now with this new drug. Wish me Luck.

    0 Comments
  7. 7
    • BobbyG
    • Experience with Renal Cell Carcinoma
    over 3 years ago
    BobbyG's Avatar

    Cough

    Side Effects

    24-7 cough with orange mucus. Relatively large amounts of Morphine is only thing that makes a dent in cough.

    0 Comments
  8. 8
    • BobbyG
    • Experience with Renal Cell Carcinoma
    over 3 years ago
    BobbyG's Avatar

    sunitinib

    Drug or Chemo Therapy

    Just starting drug today so all experience will come in the future.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment