jdcarolina's Journey with Invasive, Squamous Cell Carcinoma

Spouse/Partner: Head & Neck/Throat Cancer > Oral Cavity and Oropharyngeal Cancer > Squamous Cell Carcinoma > Invasive

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 61, Stage IVA

  1. 1
    • jdcarolina
    • Experience with Invasive, Squamous ...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • jdcarolina
    • Experience with Invasive, Squamous ...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • jdcarolina
    • Experience with Invasive, Squamous ...
    over 4 years ago
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    External radiation

    Radiation

    Husband needed Xanax because of claustrophobia. Very tired after treatment, needed nap. Could not eat or drink by mouth. Started using feeding tube in week five

    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • jdcarolina
    • Experience with Invasive, Squamous ...
    over 4 years ago
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    Skin changes

    Side Effects

    Bobby is getting radiation to the neck area now. He has had about 29 treatments out of 35. His neck is starting to look sunburnt and just starting to peel now. We were told to get a lotion with aloe and vitamin e in it for his skin. Our oncologist has asked us what we are using because Bobby's skin is holding up very well I hope it is okay to share a brand name here. We are using a cream from Honeybeez. You can find it online at honeybeez.com It is a little expensive but lasts quite a while. I have used it on my skin for about five years. I have lupus and it helps my lupus rash.

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  5. 5
    • jdcarolina
    • Experience with Invasive, Squamous ...
    over 4 years ago
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    Other

    Oh No

    Bobby spiked a fever and became very weak earlier this week. After two trips to the ER he was admitted and they found a staph infection coming from his port. Massive antibiotics are being given and the port was removed yesterday. The doctors are saying 2 weeks of iv antibiotics. The good news is the strain of staph is not resistant and his TEE (echo) showed no signs of endocarditis, fever is gone and he is feeling better. He may come home early next week.

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  6. 6
    • jdcarolina
    • Experience with Invasive, Squamous ...
    over 4 years ago
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    Celebration

    Bob was able to eat a soft cooked egg on Tuesday and drank a bottle of water (sips through the whole). We are thrilled.

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  7. 7
    • jdcarolina
    • Experience with Invasive, Squamous ...
    about 4 years ago
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    Eating solid food

    Milestones

    My husband is able to eat soft foods now. He is using the PEG tube less each day. He did not lose any weight this week. His PICC line was removed on Monday, all the blood cultures were negative from the staph infection he had from his port. Physical therapy has been coming in 2-3 times a week helping him to walk again and his last visit is tomorrow. He is able to walk without the walker in the house. We are grateful for the small steps.

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