Lmc318's Journey with Cancer of Unknown Primary

Patient: Cancer of Unknown Primary

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 4 years ago, Female, Age: 47

  1. 1
    • Lmc318
    • Experience with Cancer of Unknown Prima...
    almost 4 years ago
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    Oh No

    Diagnosed with CUP June of 2012 after biopsy of lymph node in right groin. Biopsy ck7+ ck20+.

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  2. 2
    • Lmc318
    • Experience with Cancer of Unknown Prima...
    almost 4 years ago
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    Surgery

    Procedure or Surgery

    Surgery to remove ovary containing cyst, d&c, rectal sigmoidoscopy, cytoscopy. All show no primary cancer. Cancer found in lymphatic system in abdomen. None in peritoneal lining. None in organs themselves.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Lmc318
    • Experience with Cancer of Unknown Prima...
    almost 4 years ago
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    Drug or Chemo Therapy

    Began chemo on July 31, 2012. Started with cisplatin, docetaxol, 5-fu. Extremely sick for 1.5 of 3 week cycle. After 3 cycles we changed from cisplatin to carboplatin and I was prescribed stronger nausea meds. Less nausea, more exhaustion. Still get mouth sores. But I'm able to get out of bed and be present with my daughter.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Lmc318
    • Experience with Cancer of Unknown Prima...
    almost 4 years ago
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    Remission

    Celebration

    After 9 cycles, my CT in March 2013 showed no noticeable disease. I get to take a break!

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  5. 5
    • Lmc318
    • Experience with Cancer of Unknown Prima...
    almost 4 years ago
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    Lymphedema

    Side Effects

    I have lymphedema in my right leg as a result of the cancer and lymphandectomy. I've been getting treatment since November 2012. I have enlarged lymph nodes in my left groin from the excess fluid, and it is hard to tell if the nodes are enlarged only from fluid or if the cancer may be back. I'm due for another CT June 7 but may request it earlier. If the cancer is back, I'd like to start chemo. If not, I need to know this feeling is normal for the lymphedema.

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