CJhouse's Journey:

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 61, Stage III

  1. 1
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    Biopsy..needle results Follicular Lymphoma Low Grade Non Hodgkins

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  2. 2
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    Biopsy....Taking a piece of the tummor out to find what treatment is best for me. Off work for one week.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Diagnosed

    Oh No

    Low Grade Follicular Lymphoma Grade1-/2

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  4. 4
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    Pet Scan and bone marrow test being done for staging.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Diagnosed

    Oh No

    Results from the pet scan and bone marrow is stage three. The cancer was found in four different locations. My port will be placed on Wed. The Port was place and it seems to hurt!! I am getting small blisters I think from the tape they used. I will start chemo and radiation later this week or beginning of the next week and hope it is ok to use this week.

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  6. 6
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Health insurance issue

    Oh No

    wow shocking. I am now working only a few days a week. It is getting harder and harder to pay the bills. My Inc is limited coverage so on Tues I am going to FIA Office, then to the Cancer center and my last stop is at the Social Security Office. I am going ahead with treatment and hopefully some how some of this will be covered. My children have been great about helping with everything!!

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  7. 7
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    January the 9, 2012 I start the Chemo. I am so unsure of all of this right now. I have completed most of all paper work. I feel very happy it is complete before I am starting the treatment. It is hard for me to go into the unknown. I wish I knew about how I will feel after this. It shocks me! It's as if I had my whole life plan on a piece of paper and poof... I am now planning it all again taking steps without knowing the outcome. This is different,scary and something I am just going to have to learn how to do.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  8. 8
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Started Chemo on Monday. I was very scared so unuse to the unknown. I had the port placed last Wed I was unsure if it was ready to be used. It worked great :) I spent eight hours there on Monday and then two on Tues. Tues seems like it went very fast. Today 1/11/12 I feel kinds depressed. I don't normally get depressed but I am shaky, my stomach upset and my mind feels confused. I think mostly from everything going on. I was suppose to work tonight but I just wasn't felling like going in. I spent another 30 without any sleep and am wondering how to handle all of this. I wonder why I can't sleep. I am not sure how I am going to react this week and I work alone so I am amost afraid to go in. I am totally not sure what to do anymore and laugh about how afraid I am because I am not normally afraid of anything. Well we'll see what this week brings. I read the reports over tonight and was supprised at how many areas and tummor ther are inside me right now and unbelieving this wasn't cought sooner!!

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  9. 9
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Drug or Chemo Therapy

    I start chemo on Jan 9,2012 and Jan 10, 2012

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  10. 10
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Drug or Chemo Therapy

    I started chemo Jan 9, 2012 and second treatment Jan 10, 2012

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  11. 11
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Drug or Chemo Therapy

    Second treatment Feb 6th 2012 and Feb 7, 2012

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  12. 12
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Procedure or Surgery

    A Ct was taken Feb 27, 2012 Tumors are shrinking :)

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  13. 13
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Procedure or Surgery

    Third Treatment March 5th and 6th 2012

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  14. 14
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Procedure or Surgery

    4th treatment April 2nd and 3rd I'm getting there but this when was the worst so far. I feel horrible! I can't wait to get this over!! My legs are hurting when I walk. I feel short of breath and just like I am here but I really am not here. I am not driving too much any more I keep forgetting to stop at red lights---better off right now for someone to drive me most places. I am still trying to work some but I can't believe the mistakes I am making at work. Oh :) two more treatments and then maybe cancer free. I am hoping!!!

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  15. 15
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Side Effects

    Side effects: No Taste....food is no longer good :) I have memory loss so if I talk to you on the phone I might forget anything we talked about...now is the time to ask questions I may have forgotten the answers:), my legs are hurting. I get sick to my stomach among other things. I am very tired the 1st part of the month, it gets better at the end of the month. I have no control over my bladder the 1st part of the month. The 4th month the chemo made me feel a lot different then the 1st three.

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  16. 16
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    Procedure or Surgery

    April 22,2012 time for the Pet Scan I am so excited to see what is happening inside me!!!!!

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  17. 17
    • CJhouse
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
    CJhouse's Avatar

    Oh No

    :( The hospital refused to do the Pet Scan because my sugar was so high. Now I have to wait for the sugar to come down. I called my family Dr and I am taking my sugar twice a day along with Meds. I call the Dr at the Cancer center to assure it was ok to take the meds for sugar. I am waiting for a call from the Cancer Center for a date and time for another test.

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