suzyq's Journey:

Patient: Breast Cancer > Paget Disease of the Nipple

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 4 years ago, Female, Age: 66, Stage 0, HER2 Positive: Don't Know, ER Positive: Don't Know, PR Positive: Don't Know

  1. 1
    • suzyq
    • Experience with Paget Disease of the Nipple
    about 4 years ago
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    I discovered something on my right breast that was odd.

    Oh No

    I noticed a brownish black spot on my right nipple, like a mole or age spot. I showed it to my family doctor, who recommended a biopsy. I thought it would turn out to be a skin cancer, but the diagnosis was Paget's Disease. What a shock.

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  2. 2
    • suzyq
    • Experience with Paget Disease of the Nipple
    almost 4 years ago
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    After DCIS was discovered in the breast tissue, I made the decision to have a mastectomy.

    Decision Point

    A lot of tissue needed to be removed, and I felt that taking the whole breast would be better than a lumpectomy. I also made the decision to not pursue reconstruction at this time.

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  3. 3
    • suzyq
    • Experience with Paget Disease of the Nipple
    almost 4 years ago
    suzyq's Avatar

    Mastectomy

    Procedure or Surgery

    My surgery on May 31 went smoothly, thanks to the excellent pre-op and educational services provided by my medical team. I had no nausea, and pain was minimal. I stayed overnight in the hospital, and then at a nearby hotel for 3 days until given the OK to travel the 400+ miles home. I'm doing well, controlling discomfort with Extra Strength Tylenol. The compression garments have been such a wonderful thing. I first had a "binder" that looked like a tube top that Velcro-ed in the front (pink floral, no less). Now I am in a soft cotton zip-front cami that is so comfortable. I only had one drain tube, which is still in. My doctor here will take that out on Friday. The BEST news, though, is that there was no sign at all of any cancer cells in the lymph nodes or outer edges. I need no further treatment. I need to rest, heal, and thank God that an odd little brown spot led to this life-saving surgery. My DCIS could have gone undetected for a long time, until it was invasive and life threatening. I am so grateful to my wonderful, amazing doctors and caregivers at the Mayo Clinic!

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • suzyq
    • Experience with Paget Disease of the Nipple
    almost 4 years ago
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    My drain tube is out!

    Celebration

    I am a long ways from where my mastectomy took place, so needed to engage the help of a local surgeon to take out my drain tube. It stayed in about 3 days longer than it really needed to, and during that time I was absolutely miserable. What a relief to have that thing gone! I have started to gently do my exercises, and am getting out a little bit. Still pretty sore, but Dr. said everything looked good and was healing nicely.

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