CPHair's Journey with Rare Cancers

Survivor: Rare Cancers

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: almost 15 years ago, Female, Age: 69

  1. 1
    • CPHair
    • Experience with Rare Cancers
    over 5 years ago
    CPHair's Avatar

    Diagnosed

    Oh No

    I was diagnosed with what the doctor thought was ovarian cancer, but when she performed the surgery it was found to be Liomyosarcoma. I heard all of the most feared words: terminal, untreatable, guaranteed to come back. But from the beginning, from the time Dr. Beal walked into the exam room with tears in her eyes, she said she prayed for me. As a born again Christian this reassured me that I would be fine. Hope is very important.

    0 Comments
  2. 2
    • CPHair
    • Experience with Rare Cancers
    over 5 years ago
    CPHair's Avatar

    Surgery

    Procedure or Surgery

    Dr. Beal had the insight not to cut my cancer out but to peel it out. It had taken over my lower extremeties, growing on all the soft tissue of every organ. It took about 3 months to recover enough to go back to work as a hair stylist. She said I had to stay off of my feet because I was literally like a skinned cat inside. She did not give me blood transfusions but said my body would reabsorb my blood in time and it did. The blessing is I did not have to undergo any treatments, medication other than pain killers (Aleve did the job better than Percuset). Of course being the independant woman that I am, I had to try to do things and was on my feet when I should not have been. The blood pooled in my genitalia and gave me what appeared to be what men would consider "blue balls". It scared me into staying off of my feet.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • CPHair
    • Experience with Rare Cancers
    over 5 years ago
    CPHair's Avatar

    Cancer Free

    Celebration

    The last MRI (2009) showed no recurrance of the cancer. There was no party, but actually just living a normal pain free life is celebration enough.

    0 Comments