lonestarfwg's Journey with Non-Small Cell, Lung Cancer

Patient: Lung Cancer > Non-Small Cell

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 4 years ago, Male, Age: 59, Stage IV, EGFR mutation positive: Yes

  1. 1
    over 3 years ago
    lonestarfwg's Avatar

    Chemotherapy and radiation combined

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    over 3 years ago
    lonestarfwg's Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    over 3 years ago
    lonestarfwg's Avatar

    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  4. 4
    almost 3 years ago
    lonestarfwg's Avatar

    Just want to share and maybe help you with answers

    Oh No

    I began in May 2013 with a direct radiation treatment to 1 brain tumor , followed by 8 cycles of chemo therapy which included Taxotere, Carboplatin, and Etoposide - VP16 with a shot of Neulasta after each cycle. Then I did 30 radiation treatments to the right lung in 30 days straight. After a 4 month break I began 10 straight days of full brain radiation, then began the 6 cycles of chemo therapy using Alimta followed by a shot of B12, I just did my 2nd treatment out of 6 this past Tuesday. I also contracted a rare bone disease called Hypertrophic Osteopathy which causes new bone growth on all of my bones, no cure for this as it feeds off the toxins from the tumors. My most recent Brain MRI showed 6 small brain tumors and the PET scan in June showed 4 lung tumors, I am scheduled for another Brain MRI and Whole body PET scan on August 22nd. August 26th test results with my doctor right now only 1 tiny speck of a tumor left in the brain..5 are completely gone!! Only 1 tiny spot on the right lung remaining and this new chemo drug was found by the testing company to be the most effective for me. I have a major sinus problem though from all the radiation damage to the sinus cavities . Going to see an Ear,Nose and Throat doctor very soon. And continue with my chemo every 3 weeks. I am losing weight though due to the sinus infection draining causing nausea and vomiting. October 3rd 1st visit with my ENT doctor, sinus cavities are burnt from the radiation and full,very full of infection. Did some cleaning out,loaded me up on strong antibiotics and spray. Scheduled a Balloon Sinuplasty for Oct 17th . Mind you I am still dealing with major fatigue and a few minor side effects from the chemo and major radiation treatments. Oct 17th in the office the hour long Sinuplasty took place. More pain and swelling than I expected but today a week later I am showing good signs of improvement. The swelling in both eyes is getting smaller and less drainage each day. I have chemo coming up Oct 28th, leaving me with 1 more treatment. I will also be getting another MRI of the brain and another PET scan before my next Doctor visit in a couple of weeks. I follow up with the ENT doctor on the 31st. with high hopes the infection is completely gone. Now back to building my strength up and continue onward with my battle with lung cancer that traveled to my brain. My biggest complaint to this day is Fatigue big time. I can fall asleep standing up. The moment I stop moving I just want to sleep.

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